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after my mom told the nurse i wet the bed the nurse put a diaper on
me so i understand when need. just took me awhile to understand

I will say, it is very hard! My son will be 5 in Sept. We had seen two doctors whom told us not to worry about his activity level, but then I received an email consultation from Dr. Standard from Baltimore Maryland, you might notice him and Dr. Paley's name here often, they are very experienced with Perthes. If there is any way you can send them an email of your sons x-ray, they will responde to you with there opinion as soon as they can. I believe there contact info is in the links section on the site? It is hard to not confuse them about things as well...I hate to constintantly nag Ashton, no running, no jumping over and over. But he does do really well with the no jumping. Those are the main two things to try to inforce,
I believe. Running is hard to stop him, especially I know Ashton doesn't really feel pain till he slows down, its not like he is in pain, during activity, but We can tell after long weekends of being more active then the week that he is hurting pretty bad by Sunday night, Monday morning. Ashton has a big brother who is 5, and he has joined us on the no jumping so that has helped as well, they don't jump off of the swing no more...ect. Helps Ashton not feel so secluded as well...Maybe some more parents can give ya some advise as well, we now have a wagon, so that I can pull him in, and we can all still enjoy our long walks, and we have been getting more puzzles, and playdough, and books of course...hard with it so nice out huh...I was really intimidated by the nice weather comeing...You will hear lots of parents say that Swimming is awsome for children w/ perthes....
Katrina/Ashton (4)
On 6/4/07 3:30 PM, "brendandouglasdalong" <douglas.long@...

As I have stated previously my 4 year old son was diagnosed with
Perthes. The doctor told us to limit his activity. He seems to be
fine as far a movement and playing at this time. How do you limit a 4
year old boys movement and to what extend should this be done?
Any suggestions would be greatly appreciated.

NOTICE: This message may contain privileged or otherwise confidential information. If you are not the intended recipient, please immediately advise the sender by reply email and delete the message and any attachments without using, copying or disclosing the contents.

i think they should not have you there because what if your diaper
leaks during the operation and it is a operation that needs to be
finish soon and you need to change.

As I have stated previously my 4 year old son was diagnosed with
Perthes. The doctor told us to limit his activity. He seems to be
fine as far a movement and playing at this time. How do you limit a 4
year old boys movement and to what extend should this be done?
Any suggestions would be greatly appreciated.

We live in the Dayton, Ohio area and he has had an intial x ray that
showed the head of the bone was almost all gone. They could not tell
us what stage he is in until more x rays are taken in 3 months.

You have come to a very informative, helpful, careing place. Where are you located? Did they do any x-rays yet?
As you will hear again, age is truly on your side. The younger the more time to heal,
and the "stronger" there little hips are! Usually at 4 a child has such a thick layer of cartiledge that keeps everything in place as the "natural history" of perthes takes its course. I am fairly new here myself, but I can tell you that this is a great, supportive, group of people, and they will try to answer any questions you have the best they can. I am sure you will get some more helpful responses very soon!
Katrina/Ashton (4)

On 6/4/07 1:39 PM, "brendandouglasdalong" <douglas.long@...

Hello all.
My 4 year old son was just diagnosed with Perthes over the weekend.
They are not sure what phase he is in and have told us to come back in
3 months for x rays. I joined trying to find out as much as possible
about his condition. Can anyone give me an idea of what we have ahead
of us with this condition. He was diagnosed due to having pain in his
other hip.

NOTICE: This message may contain privileged or otherwise confidential information. If you are not the intended recipient, please immediately advise the sender by reply email and delete the message and any attachments without using, copying or disclosing the contents.

Hello all.
My 4 year old son was just diagnosed with Perthes over the weekend.
They are not sure what phase he is in and have told us to come back in
3 months for x rays. I joined trying to find out as much as possible
about his condition. Can anyone give me an idea of what we have ahead
of us with this condition. He was diagnosed due to having pain in his
other hip.

That's great Claudia - keep us posted and let us know how things go
tomorrow.
Meridith

-I can't see how reusables would be anymore sanitary, then disposables.
I would check with the ER boss and see what your options are.
but they should be willing to work with you. incontinence is considerd
a disibility. and to not accomidate that would violate the Americans
with disibilities act.

I have a little problem. Some of you will laugh about this issue.

I am starting a job in a local hospitals ER. The only issue is they said that "you can not wear disposable undergarments, they are unsanitary," I don't know what they would say about reusable but I doubt they are more sanitary. I physically can't use catheters, I have too much scar tissue do to catheters quadrupling my chance of getting a UTI, and I don't think the externals are sanitary either. What would you do? I have never wrong across an issue like this before.

FREE Emoticons for your email by IncrediMail! Click Here!

Dear members,

We are a Stanford University student team that is looking into the problem of Stress Urinary Incontinence and how it affects both men and women. We are seeking input from those of you who are living with or recovered from Stress Urinary Incontinence are hoping to use the results of our survey to guide how we begin to think about a possible solution.

If you are interested in helping us with your input please visit one of the two anonymous surveys that can be reached atthe following links:

Male Stress Urinary Incontinence:
http://www.esurveyspro.com/Survey.aspx?id=8abf3c7c-da8c-4699-8fbe-9b2b99c92530

Female Stress Urinary Incontinence:

http://esurveyspro.com/Survey.aspx?id=2fadfe92-ccdd-48ed-9938-08648367e8df

After a period of 1 month we will compile and share our findings with you. In the mean time, we look forward to your input. If you have any questions, please feel free to contact us directly at: vchandra@...

We look forward to hearing from you!

Thanks in advance,

-Stanford SUI Team-

I would love to make that work. That would be so great for the kids. Ashton just love the story of the Survivor winner, I think it really helped him not feel so alone. And he says, "ya and when that guy got bigger, and better he could run the fastest, and jump so high he could touch the cealing!" We have the article hanging on our fridge. I hope we can figure some sort of get together!
Katrina/Ashton 4
On 6/2/07 2:02 PM, "Brian" <bbaker904@...

Hi everyone. I had an idea and another post I saw about this. I was
wondering if any of you would like to get together at a vacation spot.
I was looking for places that would take a group of people that has
swimming and horse back riding. Two good things for perthes kids. A
place were parents can relax while the kids swim together and play in a
pool. A place were kids can get together even if they are in a brace or
use a wheel chair. Maybe fishing and canoing. Any ideas are welcome and
date suggestions like this fall or next year or something. I travel as
part of my job. I saw a location in North Carolina, but that's not very
central for everyone. I was thinking Kentucky our somewhere more
central. Give me some ideas and pass this around to others for their
ideas too. Brian

NOTICE: This message may contain privileged or otherwise confidential information. If you are not the intended recipient, please immediately advise the sender by reply email and delete the message and any attachments without using, copying or disclosing the contents.

Hi Jenny. My boss wants me to take a vacation since I didn't take one
last year. He told me to let him know a few months ahead of time before
I go. I love your area except trying to find loads out. I honestly
thought about takeing one in your area years ago, but I'm by myself. So
wondering if you and your husband would be interested in getting
together again later this summer or early fall? Long drive but maybe
worth it. Brian

It would certainly be a good time to give the docs office a call and let them know what you are dealing with. If the cast is too loose you may not have the full benefit of it. And, the smell would be another reason, but maybe not as important to the doc. They may also decide to just go ahead and remove it now even if it is a couple of weeks early. Give them a call and let us know what you find out. Good luck. Take care.

Jenny/Jared 7
"Terry B." <crossvllb@...

Jacob has been in the soica for a few weeks. It's getting a little
loose and smelly. I'm just wondering if I should ask for a cast change.
Terry

Hi Terry. I might be in this week but aren't you going back to the
doctor for a check up at the 6 weeks time since the surgery? If so, I
would try and stick it out untill then because it's possible, he could
be released from the cast if there is some regrowth in the bones.
Otherwise, you might end up doing the full extension of 12 weeks. Brian

I was just wondering if there were any women in the Michigan area who
suffer from incontinence. I use to be incontinante, but only have a
small problem with dripping now after using the bathroom. I still wear
the pads in my underwear, but would like to find someone who has this
problem.
Scott

Jacob has been in the soica for a few weeks. It's getting a little
loose and smelly. I'm just wondering if I should ask for a cast change.
Terry

Hi everyone. I had an idea and another post I saw about this. I was
wondering if any of you would like to get together at a vacation spot.
I was looking for places that would take a group of people that has
swimming and horse back riding. Two good things for perthes kids. A
place were parents can relax while the kids swim together and play in a
pool. A place were kids can get together even if they are in a brace or
use a wheel chair. Maybe fishing and canoing. Any ideas are welcome and
date suggestions like this fall or next year or something. I travel as
part of my job. I saw a location in North Carolina, but that's not very
central for everyone. I was thinking Kentucky our somewhere more
central. Give me some ideas and pass this around to others for their
ideas too. Brian

I'm in, but I don't know if Brad can take time off because he used
all of his vacation time plus for Jacob's surgery. Terry

hi i'm jamie i also wear diapers 24/7.i wear attends and a full fitted diaper too. i get my diapers from hdis and woodbury products,drugstore.com.hdis web site is www.hdis.com www.woodburyproducts.com
www.drugstore.com they have differnt brands of diapers that are not alot of money.also some of the diapers are alot better then depends.if you want to chat with me my email is jwwebpage@...
kellynorton77 <kellynorton77@...

I have Cerebral Palsy wear diapers 24/7. I have worn Depends Maximum
Absorb. for like 5 years and have only had a handful of leaks. They
seem to be very expensive and I am looking for diapers of the same
quality that are less expensive.....Anyone?

I have Cerebral Palsy wear diapers 24/7. I have worn Depends Maximum
Absorb. for like 5 years and have only had a handful of leaks. They
seem to be very expensive and I am looking for diapers of the same
quality that are less expensive.....Anyone?

Hi Claudia, That is good news that you got into Shriners. Which location are you going to? What is the name of the doctor you will see? If you have some questions that we might be able to help you with just fire away. How is Christian doing? I hope he is not having much pain or stiffness. Keep us posted on Tuesdays appointment.

Jenny/Jared 7
claudia wohlfeil <candwwohlfeil@...

I'm still new to this group. I posted about 5 weeks ago about my son Christian who's 12. Well, now 13 (his b-day was today). We finally have an appointment to Shriner's on Tuesday. It seems promising as we got a great packet of information from them yesterday.

I'll post more as we know more.

Claudia

I had surgery aug 7, and now have constant leakage. Have been told this
could last weeks, months, years. Has anyone expeienced this problem and
if so have they been able to control it. Can barely get out, Going nuts

I know what you mean. I had radical prostatectomy May 10,
had the catheter out May 25, and (due to spinal cord damage
I had 19 years ago) have since been mostly incontinent.
IANAD, but I understand that, when the catheter comes out,
some men have no leakage at all, many have some leakage for a
few days, and many have leakage for weeks and months. You see,
we men essentially have three urinary controls: the bladder
sphincter, the prostate itself, and the pelvic floor muscle.
Prostatectomy removes the first two. What we have left for
control is the pelvic floor muscle, and it's not often a muscle
we men develop.
Were you advised to get pads? My surgeon advised getting a
package of Depends for Men (in the incontinence products
section of any of the major drugstores or big grocery stores).
You wear it inside boxer shorts, held in place by adhesive;
it catches anything a man may leak. And I don't leak: I pour.
But with Depends (or its many competitors) I can do anything
I want in public. I got used to assessing how full the pad
is and changing it when it seemed full; that's something you
have to assess for yourself.
In the longer run, I get the idea the key is to strengthen the
pelvic floor muscle, because that's all we have to work with.
The simple answer is "Kegel" exercises of various sorts; I'm
sure a search for Kegel Exercises will get lots of advice.
My surgeon also refers his patients to a physical therapist
who specializes in incontinence issues; the therapy is really
variants of Kegel exercises, all to get that muscle stronger
and in tone. There might be someone in your area that does
this as well.
It's tough now, but you should be able to work over it. It's
a matter of exercise, and either weeks or months, depending on
how out of tone the muscle is now, and how much exercise it
can get. It's not something that will just "get better",
though; we have to do something ourselves to regain control.
I hope I've been able to help, and not just repeated things
you got from elsewhere. But in any case...even if you are
entirely incontinent (like me), with pads you can have a
rather normal life.
David
Austin, Texas

Hi Garth,
Yes I do have some medium and large plastic pants for sale.
However, I don't think it would be cost effective for you to pay the high shipping charges from me here in the USA to you in South Africa.

I have some print and colored pull on and snap on plastic pants for sale.
There used, but in super great condition.
I'm selling themfor $ 7.00 per pair.

Ialso have a few pair of size large snap on print flannel lined training pants for sale.
They are $ 12.00 per pair.

Onsies in size large and medium in colors and prints for $ 15.00 each.
Let me know if your still interested.
Thanks,
Tony Smiley emoticon

Hello Everyone,

I need to sell some of my supplies to help with my bills. I have about 6 cases of Easy-Fit Medium Classic(I can't wear them very well) Attends that I could really appreciate at least $35.00 a case of 96 each. They would have to be picked up at my home as I am not very good at shipping anything and my van is in the red. If anyone is interested please let me know, please.

Thank You,

Jack

" Accept me for who I am, it is me true and honest!"

babyvamp@...

I went to college for 8 years and wore diapers 24/7.

chris

First- How did you join this group at 14? Don't you need an adult to log you in here?

Secondly- Get to a doctor to check for problems.

Third- I am proud of you for protecting your bed and belongings.

Fourth- Growth spurts can cause internal lags in urinary and some puberty type growth.

Fifth- Keep your head up, you will be okay.

Take care,

Jack Kramer

" Accept me for who I am, it is me true and honest!"

babyvamp@...

I met an incontinent lady last year that absolutely tore my world down, so I am not sure what to advise here. She was a member and just used me to lay over until her hubby begged her to come back. I fell for her and the kids and was very hurt by her deceit towards me. I will probably get banned from this group if I ever see her here again. I have some very choice thoughts about her still, she costs me allot of money when she de-fraud the bank and cable company, didn't you Sandy or should I say Saundra? I won't bet but maybe someday I'll get the $1,900.00 she cost me back. I really enjoyed not being able to buy diapers for the past 4 months you know.

Take care everyone,

Jack Kramer

" Accept me for who I am, it is me true and honest!"

babyvamp@...

I am a urogynecologist in Santa Monica, CA. Synthetic suburethral slings are pretty much standard of care for treatment of female stress incontinence. I have written a book available at Amazon
THE INCONTINENCE SOLUTION: ANSWERS FOR WOMEN OF ALL AGES. It is intended as a reseource book for this situation.
The recovery is a few days, most patients leave the hospital within hours of surgery without a catheter. No lifting over 10 pounds for 8 weeks, but most other activities can be resumed in a week. No sexual intercourse for 4 - 6 weeks/ Driving is allowed when no further pain medication is needed, about 3 days.
Hope this helps
Amy Rosenman, M.D.

I did and sent the guy who runs it a note saying it was a joke. I told
him to remove me from the group. The next day I was hit by 15 spam mail
messages. I'm now blocking all mail from that place. Beware, Brian

HI I AM LOOKING FOR WATERPROOF PANTS IN MEDIUM AND LARGE SIZES IAM IN
SOUTH AFRICA

Can you tell me how he was treated before this MRI? The flatting
head and wider head and upper femur is results from weight bearing
too much with out the head inside the hip. Sorry to write this. This
is a normal result from todays treatments with the wait and see that
doctors do now. Synovial fluid builds up around the head when ever
there is irritation and causes pressure and pushes the head flatter.
Fractures are also normally seen with this also.
I can imagine when the specialist sees him he will push for a
femoral osteotomy to change the angle of the hip to a position to
help the flattening and weight dispersion. Check Bobby's photos to
the left here and see if his MRI is like Justin's.
I'm sorry for putting this bad news to you. I wish more doctors
would remember older treatments because of this. I'm not saying it
would have stopped it but may have reduced it. At this point even a
fixator may help by holding the hip away from the socket to allow
the head to go back out. This is one of the newer helps and has some
good results. I wish I could write better info for you. I'm sorry,
Brian

I'm still new to this group. I posted about 5 weeks ago about my son Christian who's 12. Well, now 13 (his b-day was today). We finally have an appointment to Shriner's on Tuesday. It seems promising as we got a great packet of information from them yesterday.

I'll post more as we know more.

Claudia

Unfortunately, if your wife starts claiming that your wearing diapers
is a fetish and that being around you is harming the children, you may
not be able to avoid dragging your health issues into court. I suggest
that you get a good lawyer, get your medical problems well documented,
and find a doctor who would be willing to testify on your behalf if
necessary.
Good luck! You are really in a tough spot.

We went and saw the Dr about Justin's MRI report and he said that he
had flattening and decreased height of the left femor with widening of
the femoral neck commonly found in Legg Calve Perthes.
There was also a fracture in the femor with fliud built up around it.
Then he said somethinng about left hip joint effusion?
Can anyone tell me what this means? I thought he was suppose to be in
the healing stage. Is this a normal with LCP? What does the flattening
mean? Is this normal or a bad thing?
He goes to a specialist on the 18th of June. They couldn't get him in
any quicker. We were told he couldn't run or jump...just walk. We went
to Walmart to buy a few things and by the time we got home, he was in
terrible pain and said he just wanted his leg cut off. He is only 11.
He isn't taking anything, but I gave him some aspirin. Resting seemed
to help some, but he was still hurting.
Sometimes he has to walk around with a cane. He is still having right
and left leg pain, although the LCP is in his left side.
Thanks in advance,
Kristy

What is that? Brian sent me a link and I can't figure it out. Is it a
new group or a mailing community??? Terry

I thought that was a great look. Your daughter looks great. Thanks
for posting and adding a link for those looking for a place to send
support funds. Brian

Hello Jack,

My name is Jack also, stop looking for sympathy and be you, not some bantered diaper wearing slug crawling along the ground. Try a Chiropractor that knows their job and inform them of your troubles, my hospital wouldn't release my x-rays soon enough so he took new ones and found what those idiots couldn't see plain as day that my cord was pinched almost completely causing my urinary problems. Find someone that knows the human structure better than a quack to help you.

Good luck,

Jack Kramer

" Accept me for who I am, it is me true and honest!"

babyvamp@...

Hi Melissa :)
Can only speak for myself, but I am alive - lol. However, I admit I am not too active in this group and I will try to get better.
I am a Norwegian-English lesbian and incontinent woman. Have been incontinent since I was around 10-12 (bedwetting) and have needed protection 24/7 since my late teens.
Have a demanding job, but have so far found it more rewarding than stressing (although it is a thin line) :)
Hope you are well and wish you all the best.
Hugs,
Kathy (Katherine) :)

Hi gang. I added a study for AVN to the links. It's a hard read but
gives info on how it happens and why. If compaired to perthes
treatments it gives a link to info. Brian

Dear Jack, I am so sorry that they are doing this to you and the children. I
think that the children need to know that they have not been told the truth
before it is to late and they will turn from you forever. It seems like a hard
thing but I would get the best family law person and take it to court. Then you
will have the truth on paper if your children ask you about what they have been
told. Many hugs from a friend
Ann H.

yes I still alive.

what do you want to talk about? Smiley emoticon

Sincerely, Brent Jannereth

Cool deal about the speeling bee. Maybe he can help me.. lol. Oh I
wish I could give you a vacation were I live. Plenty of gold
courses, cooler temps, and Dollywood about an hour away. The
hunstville space camp for kids is 2 hours south. It's cheep around
here too. I hope everything checks out monday and maybe some rest
for you. You sound like me now. Take care. Brian

You might want to ask for indexes on his hips. The doctor knows
what I'm referring to. If the hip is subluxed and out of the socket,
the body trys to make a false socket to hold the hip. It's a little
different than impingment but cause the same hinged movement. It
sound like they need to get both hips in a deep position and hold
them there for a while to allow the body to grow around them
correct. They still may need to do surgery to accomplish this, but
maybe getting him into something like a rhino brace at night can
help start this. He will probably need traction to start out.
Hopefully the doctor will dig in and act. Just ask for index
numbers. That confirms weather this is AVN from subluxation. Brian

Well, on this subject I would just like to say that diapers of anykind leak on occasion. I haven't had molicares but I do believe some time they will leak. Anyway, I wear diapers and onesies. Everyone says they're for 'babies' but the work as well, a body stocking or body suit isn't much different. In fact I prefer onesies for the comfort, the body suit would rub wrong and make me chafe or get a rash quicker than a dirty diaper. LOL. If I were you I'd go with the onesies, there is a person on here who's selling them. Even though he already posted here's his e-mail:

tinytony59@msn. com

Try taking him up on his offers. See everyone later.

Hi Katrina. Sorry I can't help with posting the xrays issue, but I'm sure Brian can help with that one. Has Ashton had an arthrogram of the hip yet? That would tell the doc alot about the postion of the cartiledge in the hip and what angle the head of the femur would best sit at to stop the subluxation. Don't beat yourself up over the what if's. We all have had this conversation with ourselves. We do the best we can with the information we have, and then we do what we can to learn more. Has the doc said if Ashton might have DDH that was never diagnosed? You might have told us but I just can't remember that detail. I hope Ashton is feeling good and is having some fun. Keep us posted.

Jenny/Jared 7
"katrina.hembree" <katrina.hembree@...

Hi Everyone,
I am having a hard time being able to post Ashtons x-rays done the other day. The hospital
actaully gave me film this time, so I scanned them in but they are really dark. Hoping to
lighten them up. I'm still trying to be very patient for Tuesday. That is when we will see Dr.
Mehlmen in Cincinnatti, OH. I kind of have a general question. It appears that Ashtons right
hip/femur is alot further out away from the pelvis bone then the other leg. The left leg/joint/
bone area looks as if it is touching the pelvis bone. Is this due to the sublexation? I can see
where things look as if they are moving outward. and the ball is about completely flat. We
recieved a straight leg x-ray of both legs, and a frog leg view of his right.
I am also trying very hard to not beat myself up, that perhaps his perthes is caused from the
sublexation (mild hip dysplasia). It does really makes since though, the more I think about it.
Ashton has had a painless, mild limp since I can remember, and I assumed it was him just
getting use to things, I thought some babys kind of have a wabbly walk anyways. But to think
that we could have prevented perthes if we would have caught the dysplasia earlier. Well
thats really hard to chew. Ashton is 4 going on 5...everything I can find on the net about hip
dysplasia, let alone to cause perthes, is much younger, under a year old...
Any advise, or answer to my x-ray question would be great.
Thanks Much, your a great group...
Katrina & Ashton

We are and hope that all is going well for you miss melissa :-)

Your friend

Alan :-)

Thanks, Brian. Jared will have the MRI early Monday morning. I talked with the docs assistant and we all talked with radiology and agreed that there really was no reason to sedate Jared for the MRI. We will have a tech that will be patient and will work with Jared to get it done. He is still having the hip popping, sometimes he has a lot of pain and sometimes very little or no pain. He says that his hip feels diffierent than it did a month ago. I hope the MRI gives us some answers as to what is going on. Jared got his orthotics on Wednesday. He is getting used to them, just wearing them for an hour or two at time. They said it should take about two weeks to get used to them. Last Friday was Jared's last day of school. He is walking so much better this week, I think it is because he is not walking so much like they do at school. Also, on the last day of school the second grade(about 180 kids) had a spelling bee and Jared was the Winner (he spelled
photosynthesis)! How cool is that?! It was a good ending to a school year that started with surgeries and infections. Thanks for checking in on us. It has been a crazy week with the boys being home and working both jobs and solving the MRI issue, and lots of other stuff. I need a vacation!

Jenny/Jared 7
Brian <bbaker904@...

How is Jered? Did you get the next MRI done yet? I'm worried about you
and your son and praying hard for you two. Brian

I have an over abundance of plastic pants for sale.
They are size large, and a few medium size as well.
I have colored ones as well as print ones.
$ 7.00 per pair
Also some adult onsies in medium and large i colors and prints.
$ 15.00 each.
shipping charge is seperate.
All items are clean and in great condition.
Anyone interested can contact me at:
tinytony59@...
Hope everyone has a great day!
Take care,
TONY D. :)

Hi Kelly. I'm sorry that Kate is having pain and now the talk of another surgery. How is Kate handling the thought of another surgery? The Valgus Osteotomy will have some recovery time. Osteotomy is cutting of the bone and Valgus has to do with the angle and rotation change to the bone. My seven year old son Jared had the varus osteotomy last August. He was in the hospital for two days. He did not have a cast. There is hardware, a brace with screws, that hold the bone togther. He had toe touch weight bearing with crutches. He started school 5 days after the surgery and used a wheelchair for a couple of weeks, then mostly crutches for six weeks, he still used the wheelchair at school to get around since the campus is so large. For Kate, it may be possible that they would not put her in a cast, that would make recovery a little easier for her and the family. I am curious about what the doc saw on the MRI. Is he seeing cartilage loss, or bone loss, or is it that
the bone regrew and part of it is outside the socket, and what is the long term consequence of what he sees? I hope you feel like you can contact them and ask questions. When do you see to doc again? Please keep us posted and tell Kate to take it easy.

Jenny/Jared 7
kaehrgott <kaehrgott@...

Hi, My name is Kelly and i have a 13 y/o daughter Kate. She was dx
with lcpd in 2000. She had the containment surgery and had been doing
great since then. In Nov. She had the growth plate in her good knee
broken so that her bad leg could catch up. The surgery went great and
when we went back for her 6 month f/u she told the doctor about new
pain in her hip. She had an mri,and now the doctor said her hip looks
like the hip of 55y/o. He is afraid it is going to break on her so he
wants to do this surgery call valgus osteotomy. Any thoughts?
kelly

Hi
i am a newly incontinent person as a result of continued BHP leading
to overflow incontinence.
At first I was just dribbling a little and then there was a simple
stream, for which I started to wear a pad, and then no sensation of
urinating at all. I then switched to adult diapers.
Saw my urologist and he said that I would start to get my sensation
and urge soon but to be patient and do a few exercises that would
help.
I have been doing a few of the simple exercise a few times a day but
have not started to get sensation back yet.
So here is the questions.
1. I have switched from depends (they suck) to molicare super. The
Molicare is much better and more comfortable. My incurance company
also sent me an Abena Body Stocking. First, should the diaper be
strapped as tighly as possible? I get leakage from the top and the
wait band of my pants get damp. Also, has anyone else used the body
stocking? The body stocking is a life saver as it stops the sagging
of the diaper and keeps it closer to my body.
2. Has anyone else experiences overflow incontinence and how long
has it take to get your continence back?
Looking for insight..
Thanks

What surgical procedure was used and what outcomes resulted? Adult
daughter planning surgery to place synthetic sling. Concerns center
on short term studies of synthetics, risk of bladder/urethra erosion,
body rejection of foreign material, continued incontinence, among others.
welcome anyone's experience, MD consultation suggestions, or web
resources.

Hi Everyone,
I am having a hard time being able to post Ashtons x-rays done the other day.
The hospital
actaully gave me film this time, so I scanned them in but they are really dark.
Hoping to
lighten them up. I'm still trying to be very patient for Tuesday. That is when
we will see Dr.
Mehlmen in Cincinnatti, OH. I kind of have a general question. It appears that
Ashtons right
hip/femur is alot further out away from the pelvis bone then the other leg. The
left leg/joint/
bone area looks as if it is touching the pelvis bone. Is this due to the
sublexation? I can see
where things look as if they are moving outward. and the ball is about
completely flat. We
recieved a straight leg x-ray of both legs, and a frog leg view of his right.
I am also trying very hard to not beat myself up, that perhaps his perthes is
caused from the
sublexation (mild hip dysplasia). It does really makes since though, the more I
think about it.
Ashton has had a painless, mild limp since I can remember, and I assumed it was
him just
getting use to things, I thought some babys kind of have a wabbly walk anyways.
But to think
that we could have prevented perthes if we would have caught the dysplasia
earlier. Well
thats really hard to chew. Ashton is 4 going on 5...everything I can find on the
net about hip
dysplasia, let alone to cause perthes, is much younger, under a year old...
Any advise, or answer to my x-ray question would be great.
Thanks Much, your a great group...
Katrina & Ashton

My name is Daniel and I am a 14 year old boy. I just started going through puberty and now I wet my pants 24/7. What should I do? For now I bought diapers.

Hi everyone
My daughter Caitlin is very involved with therapeutic horse riding
following her diagnosis of perthes and subsequent surgeries. She is
the 'face' of our local Riding for the Disabled (RDA) centre - which
you can read all about at www.equestriantherapycentre.co.nz - lots
of info there about hippotherapy etc. The site was set up because we
are trying to fundraise to build a new NZ$1.5 million indoor arena to
help people with all manner of disabilities, but also to help raise
awareness of what can be achieved by using a horse for therapy. Most
pages on the site, feature a photo of Caitlin on them, which isn't a
bad thing, also her story about perthes and how horse riding has
helped her is on there.
Yesterday we had a special meeting up at RDA and Caitlin got her
photo taken with one of her favourite horses, Mystic and the CEO of
RDA in New Zealand, so this time her photo made it into a national
paper, instead of her usual foray into the local paper. If you are
interested, you can read the article online at
http://www.nzherald.co.nz/section/story.cfm?
c_id=204&objectid=10443051 and see a pretty neat photo of her - horse
looks good LOL!!!
Anyway, for us its not only about supporting the RDA, but also about
raising the profile of perthes in the media and she makes a good
spokesperson and loves getting her photo published!
Anyway, just a very proud mum here, enjoying the chance to do
something really positive for perthes and the RDA, as their input
into Caitlin's therapy is beyond anything we could ever thank them
for.
Donna - NZ

How is Jered? Did you get the next MRI done yet? I'm worried about you
and your son and praying hard for you two. Brian

Jack - I live in Oregon too, and I'm sorry to report that your
observation that there aren't many women here who are tolerant of men
with incontinence issues appears to be correct. I haven't had much
luck finding someone either.
Rachelle - When I get leg cramps, I mix up a large glass of Gatorade
and drink it to replace electrolytes. A pint of Guinness Stout might
work even better!
Roger

Hi Kelly. That surgery is quite common for multiple problems child
threw adult have. What it does is reposition the top of the femur to
allow the weight bearing to be distributed better threw out the hip. It
takes the pressure off the side of the socket and helps the hip sit
deeper in cartilage. At her age, she may not even be casted. It has a
painful recovery of about 1-3 days then less pain for 4-6 weeks. After
6 to 12 months, she will need the hardware out, but that's a one day in
and out and back on crutches for a while. Jenny's son had that done
with out a cast. It's quite common with perthes. Brian

This is a very quiet group. Anyone still alive out there???
Melissa

Anyone here in college and having to deal with urinary incontinence?
Would like to chat about it? Thanks

My childs other parent is calling my problem a "bizarre fetish."
Refusing to look at my conditon as a medical problem. This current
claim is "without any discretion in front of the children." I need
some advice on how to say I have always been a safe resource for all
of the children and that they will continue to be safe. There is no
accusation of foul play, yet, but I can see it coming in the not to
distant future. I really do not want to drag my health issues out in
court, nor am I going to roll over and let someone call me a monster
over this issue. What advice can I get from here?
Thank you for the time it takes for a your deep thoughts.

Matt:
I always enjoy a good challenge but some I can do without. How
old are your children and how is their bedtime routine? Mine are: Tom
7, Hope 6, David almost 5. I have a good routine but there is always
the fighting sleep, rarely do they just fall asleep or go to bed
quietly.
Usually they play well together (and clean well). The real
adjustment comes after they have not seen each other for several
days.
I love watching them grow and learn. Exercise their abilities and
lean from each others accomplishments.

Hi, My name is Kelly and i have a 13 y/o daughter Kate. She was dx
with lcpd in 2000. She had the containment surgery and had been doing
great since then. In Nov. She had the growth plate in her good knee
broken so that her bad leg could catch up. The surgery went great and
when we went back for her 6 month f/u she told the doctor about new
pain in her hip. She had an mri,and now the doctor said her hip looks
like the hip of 55y/o. He is afraid it is going to break on her so he
wants to do this surgery call valgus osteotomy. Any thoughts?
kelly

Go to another dr for another opinion?

In the meantime, maybe you find a local Incont support group near you and try to schelp your partner along or go alone to hang with others. I think there was one where I used to live.

I noticed alot of material online said that "there's no need to be incontinent". That worries me. have you seen things like that?

<jack97062@...

LPH.Best of health & spirits.R Butterfly 3 Changing Color Heart

Hi Layla,
In my group we have atleast one mom present who has two children with
perthes. We have a few other familial cases as well. I'll be happy
to put you in touch with them if you like.
Barb

I don't see why that would be the case. Personally I
think it would be easier to find understanding from
somebody who also has to deal with incontinence.
Although incons shouldn't limit their dating circle to
only those who are in the same boat as you. There is a
good chance you can find somebody who is not incon
that will be accepting of you.
However I don't think non-incons can really understand
what it's like to be incontinent.
-Darin

i just post mine 1st video on you tube it about jerks of the world
check it out if you can tys

In my experience friendships work out this way but every time I hear of an incontinent couple it doesn't work out unless they are incon at the same level. Though that is just my experiece.
[INLINE]

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I undertand how you feel. My son was diagnosed Oct. 06. I didn't know the symptoms and had never heard of perthes before but still felt that sick feeling. You shouldn't be hard on yourself as you were right it would be quite rare. Be glad that age is on her side and also that you know what she is going through. I have no idea what my son is dealing with, how it hurts or what is best for him. I know none of our words can make the situation seem better but know that after Monday maybe you will have some more answers and how best to deal with it. My son is very clumsy too and is falling all of the time. My in-laws make fun of him and say he just doesn't pay attention but I know the perthes will affect his balance so I try to tell them that.

Anyway, we will keep you in our prayers and things will work out!

Beth (Dylan 4)

She is 3 and was falling quite a bit(she has always been quite clumsy)
and she was hurting her knee. It was still swollen after 2 days(over
the weekend) so I called and made her an appointment. I thought that
she may have pulled a muscle or something. So the dr. had some x-rays
done and when she put them up I saw exactly what it was. My worst
nightmare. (I had perthese disease as a child myself) I have seen
enough of my x-rays to know what it was before the dr even told me. I
can't believe it. We were told that the possibility of either of my
daughters getting it was very rare; because they are girls and that I
had it too. As a Mom I just feel terrible that I didn't put 2 and 2
together, especially knowing what the symptoms are personally. I
physically felt sick when I saw those x rays and helpless. I was just
wondering if any other Moms have went through this? If so any advice
would be great. She has an appointment on Monday at Childrens Mercy
Hospital with an ortho doc. so I guess we will know how severe it is
come Monday. Thanks for letting me vent. Layla

I have had to wear diapers for several years now. My doctor said "I
can not find anything wrong with you. I do not know what to tell
you. Just wear a protective garmet if you have the need." My chids
other parent does not understand. She was the first to complain about
my problem ad has beeen totally lacking in sympathy for me. The few
other people who do know about my problem are not sympatheic. Of
course I have a few issues with it myself. I am looking for
sympathetic people. I want to find a life long partner who can live
with my issue and still respect me for the man I am. Is there a good
woman out there that would consider a life with a great stable man
with children in Oregon?

Hey, I'm in connecticut!!!-

I know when I was young in the late 50's braces were the way to go to
for treatment for perthes.I had one of the braces for a while and it
seemed to work well for me. Most kids back then seemed to have good
results with them too. Then the trend was away from braces to just
letting the kid outgrow the perthes. Looks like it might be heading
back to braces again. Amazing how as much as things change, some
things come back in fashion. Keep up your good work and let us know
how it works out

Do you think two Incont ppl can become friends and lovers or does one partner have to not have these issues?

joe <moejoe06108@...

hey dont feel bad i am in the same boat i was in a cr accident and
when a woman heres i am in diapers they all run the other way i am
tired of it but may be some day i will find some one i am just
looking for some one even if its just friends i like to have a
friend who is a girl to talk to about things and share stories i
work a lot at my new job i got 3 years ago and like it a lot but may
be some day i will find some one here in connecticut i just have to
get out more i think that is most of the problem so if any one who
would like to chat let me know ok talk to you later hugs--- In

Hi everyone. I'm doing another brace write up fo another doctor in
Atlanta. I would like to show on the write up braces being used today
and not just the brace pictures I have. The reason is because the
braces are being made multiple different ways and not all are the same.
This will give me a better up to date write up. I will not post
anything sent to me online in any way. I will not post the write up
either. This way nothing can get out in a bad way. Many doctors are now
writing advising the use of a brace any time a dysplasia is seen. The
trends are turning back to braces by more doctor. Maybe I had something
to do with it challanging the study that put down the scottish rite.
Who knows, but I'm getting private emails wanting information about the
braces. If you can share, it would help.It's always better to show the
brace being used, rather than the brace alone. That's why you always
see a child in a brace being advertised by a orthosis seller. Brian

Interesting!

I googled my dr.s name, bisphosphonate and perthes and got the following pdf document.

Apparently they held a Perthes seminar or course in the fall of last year in Baltimore. Many leading doctors spoke about their methods of treatment. Our doctor (Schoenecker) spoke about non-surgical containment (that's his big thing).

But one doc from Australia spoke about this bisphosphonate treatment.

Check it out - Paley was there, Standard, Herring, Wenger, etc. A lot of the names I regularly see on this group's postings!

http://www.lifebridgehealth.org/workfiles/deformitycourse/BLDC2006pdf/Perthes2006.pdf

Hopefully they will begins some trials in the US somewhere.

Lisa/Adam 8

Brian <bbaker904@...

Hi gang. I wanted to check this out before writing this. It seems
trials are going on down under for a new drug treatment for perthes.
They are finding osteoporosis drugs used by adults are showing good
results with perthes. It seems the drugs stop the fragmentation and
breakdown of the dead bone. This gives support to the head and keeps it
from collapsing and deforming. New growth happens with in the dead
bone. As a study is released, I will share it. This may be something
you can talk with your doctor about if your child has just started with
this. As usual, it may take 2 years befoe it hits here in our country.
Brian

Hello,
This email message is a notification to let you know that
a file has been uploaded to the Files area of the Information-perthes
group.
File : /ORB_Research_Report[1].pdf
Uploaded by : bbaker904 <bbaker904@...
Description : Bisphosphonate treatment in Perthes
You can access this file at the URL:

hey dont feel bad i am in the same boat i was in a cr accident and
when a woman heres i am in diapers they all run the other way i am
tired of it but may be some day i will find some one i am just
looking for some one even if its just friends i like to have a
friend who is a girl to talk to about things and share stories i
work a lot at my new job i got 3 years ago and like it a lot but may
be some day i will find some one here in connecticut i just have to
get out more i think that is most of the problem so if any one who
would like to chat let me know ok talk to you later hugs--- In

Hi gang. I wanted to check this out before writing this. It seems
trials are going on down under for a new drug treatment for perthes.
They are finding osteoporosis drugs used by adults are showing good
results with perthes. It seems the drugs stop the fragmentation and
breakdown of the dead bone. This gives support to the head and keeps it
from collapsing and deforming. New growth happens with in the dead
bone. As a study is released, I will share it. This may be something
you can talk with your doctor about if your child has just started with
this. As usual, it may take 2 years befoe it hits here in our country.
Brian

Terry, I hope others will reply to this. I know we talked about this
already. Jacob doesn't seem happy wearing diapers so I don't think it's
a like issue or something like that. I'm sure it will subside once out
of the spica. I would do away with them and rely on bed pads and an
alarm for wetness. I'm sure he will out grow this in time. Just
remember he wasn't dry at night when this started anyway. Just figure
perthes is delaying this from going away. Brian

This would be idea situation for me. I could work on my book all day and constantly leak / flood / etc ...

LPH.Best of health & spirits.R Butterfly 3 Changing Color Heart

I know it's normal for these kids to have night accidents but I'm
getting concerned now. I posted this on the hip baby group and didn't
get any responses. Jacob was a night wetter from time to time before
the perthes. In the petrie casts it became worse. The accidents have
become more often and during the day too. My doctor said it was fine to
tuck a diaper in the cast or use a diaper overnight in the petries. I
check him 4 hours into the night and he is wet. I change him and find
he is soaked in the morning before he wakes. It's almost as if he has
reverted to a 2 year old again. Is there anyone else on this group
fighting this? I feel we are alone with this. He was getting better
before the surgery and now it's back to major incontinence. Terry

When I was in the hospital for 4 days for surgury on my face, the only thing that I noticed is that the staff never called them diapers. They would just ask if I needed a clean brief.

Hey Jenny. Sorry to hear you had a bad experience. Most of the kids
I know get sedation before the MRI. It's just enough to make them
sleepy and relaxed for a few hours. Nothing more than an IV with an
injection. Short and sweat and recovery in a few hours. Did Jered
get fussy or couldn't keep still?? I find that most techs do rush
threw them leaving it up to the radiologist to look at give results.
The tech isn't normally the radiologist. Brian

Hi everyone, Jared went for the MRI on Friday, it did not go well. We
had a lousy tech who was more concerned with how fast she could get
done and on to the next one, rather than making sure everything was
going well. We have to call on Tuesday to reschedule with sedation.
Jared is still having the hip popping and pain. He has some numbness
from the other day, but it is getting better if he takes some
ibuprofen. It seems like it would be important to get some answers
while he is experiencing these symptoms, instead of waiting too long
and causing more discomfort for a child. Have any other families had
experience with MRI with sedaton? How much time should we set aside
for the whole visit? Just curious about what we might expect. Thanks
for sharing.
Jenny/Jared 7

This is a post just to let some of you know one of the major diaper
companies is making a larger size. Pampers is making a size 7 now and
should be in stores soon. Someone is already selling them on ebay. This
should fit a child up to age 12. Brian

i dont know i think what you are doing is the best way plus if it works for you then continue with it

baby xx

Thank you for posting those. He looks so brave there. Typical casts
for this. Looks like a little internal rotation but not much. How long
does he need to be in them? Are they doing a brace after? Brian

Good morning

Its 7am hear i have just woken up and mum is looking after me i have had a lump that has got biger over the weekend so mum is going to take me to the dr this morning it hurts alot its in my lower tummey nr were my nappie gose so i hope it dose not have to come out i am in nappies 24/7 bacouse i had a spinel infection that left me parlized from the chest down when i was 14 i am now 17 years old i am in full care from mum and dad

years ago, I started having a weird sensation that my toes were curling. It took me about three years to tell my dr b/c I didn't want her to think I am crazy.
Luckily, this was another time she told me she had what I have and put me on tonic water for the quinine which will stop the cramping.
All went well. I could swim and walk comfortably if I drank the tonic water every three dayz like she did.
But then I started getting those horrible calf cramps. Are they not the worst thing possible? Luckily, they occur 99% of the time in bed. That condition may be called "restless leg" but that term, to me, isn't clear and would prefer a more "medically based" term for this. But still the quinine in the tonic helped if I drank it religiously.
Anyway, seems like USA's FDA has determined that quinine isn't good for cramping and that it is, in fact, dangerous. I had started keeping the pills around which, btw, are extremely expensive, in the event that I hadn't had tonic water and it was late and near bedtime (we wouldn't want to have to tinkle MORE, now would we?) .. I could pop one of these huge and foul - tasting pills. Having the pills was also good b/c if I sleep out, I didn't have to have tonic water with me.
My pharmisist says that the quinine pills are still available but the dr said he isn't prescribing them anymore based on this new research. He said I could drink the tonic water, however.
So now I am drinking the tonic water again, which is actually more effective and for fifty - five american cents, I get eight doses, where, on the pill, for one American dollar, I get three doses.
I was using the pills only as a fill in after a while.
Quinine does create a bit of a hassle. You have a continuous bleed which isn't significant diagnostically but which is ever present, causing slight vaginal oder - a blood smell - as it passes through the uretar. I shower out in there. [INLINE] OMG I always have too much information [INLINE] I do apologize ...
Anyway, I drink my ten glasses of daily water required and try to drink the tonic water earlier in the day.
It doesn't taste that great either but I do know that in certain European areas ppl drink it straight so I do that b/c it is easier for me to measure like that.
But when I remember around bedtime I haven't drank the tonic water, I have the six ounces of tonic water and then I am going to bed with too much liquid and will have to tinkle million times. That and flood / leak ..
What could I do?? And believe it or not, I'd much rather leak / flood than have those terrible cramps.
Any ideas?
LPH.Best of health & spirits.R Butterfly 3 Changing Color Heart

I finally created a photo album for Charles.Check out Grammy's brave
boy.

after weeks ofsevere back pain i finally went got checked out. after
the normal questionen and explianing to the doctor that i was
incontinent she started her exam.when she found i was in a diaper she
freaked she kept saying you r in diaper why are you in a diaper and i
finally had enough about my diaper.

it was base on micheal landon aka little house on the parrie aka lille
joe of bonanza life story his mom did it to him when he was a kid it
star the kid from james at 15 i think

Hi Krist. Welcome to the group. Bilatera; perthes is the most
rarest but I had it, and it's not fun. It's sounds like he had a
mild case if he was in regrowth when diagnosed. Resting when hurting
is very important. I hope you can pass on what they find on the next
check. Hopefully everyhting is growing back nice and it's just the
average day to day issues. Let me know if I can answer anything for
you. Brian

There is one, The Loneliest Runner (1976) about a guy that is a runner. He used to have to run home every day because his mother put his sheets out the window to dry.
This website shows some media clips of the movie.

http://www.wetbuster.com/famous_people.htm

That is great news about his perthe's! I had scolisis when I was young but never needed treatment - I am hoping Dylan doesn't get it.

Anyway, I am happy you you guys! Enjoy the games and summer!!!

Beth (Dylan 4)

I am on myspace too - I will check you out on there!

alice <alliehay2004@...

Sorry for the mass email but it is so much simpilier this way than to email everyone individually....

Houston we have................WE HAVE REGROWTH!!!!

Tanner had his appointment with Dr. Brown, his Ortho on Friday. It went well when it comes to his Perthes. We were told we have REGROWTH!!! What great news. Tanner was excited. It's not much but it's there. At our last appt in February he was told he could begin a sport because we had followed his instructions to a "t" and now he needed some activity besides PT. Tanner took an advanced swim class and then when it was complete we opted to see if he could swim the length of the pool (25 yds) to join the Lake Central Barracuda's..... www.lcbswim.com He made it and has been swimming/training for the last month. It is wonderful exercise and low impact, which played a huge decision on our behalf. He will compete in his first meet in a couple of weeks at LC. He is nervous but it's all a learning experience! He will do fine.

At our appointment though we did learn that he has more tight muscles...achillies tendons and his hamstrings. He is also weak in his arms and legs. With all the PT he gets and exercise with swim, it's hard to believe. We also were told that he has Scolliosis and we will continue to watch it for now. He has a 11 degree curvature of his spine previously it was 9 and was not considered Scolliosis. It's a lot to understand WHY and I am questioning it every day. I will say though he is doing great and has a wonderful outlook....LOL...he just goes on and does what he needs to do PLAY!!!

Well that's our update on Tanner! If you want to you can still visit my Live spaces page at http://alliehay.spaces.live.com/ i don't blog much anymore but there are some pics on here.
Or check out my myspace page http://www.myspace.com/hayalice I don't have many blogs but there are always updated pictures on there and a song or two... :o)
Would love to hear about you and your family drop me an email soon.
Hugs!
and
Ciao :o)
Alice

Beth Lunsford

Tanner Mgt.

Marketing Director

(270) 298-4646, ext. 102

128 N. Main Street

Hartford, KY 42347

Sorry for the mass email but it is so much simpilier this way than to email everyone individually....

Houston we have................WE HAVE REGROWTH!!!!

Tanner had his appointment with Dr. Brown, his Ortho on Friday. It went well when it comes to his Perthes. We were told we have REGROWTH!!! What great news. Tanner was excited. It's not much but it's there. At our last appt in February he was told he could begin a sport because we had followed his instructions to a "t" and now he needed some activity besides PT. Tanner took an advanced swim class and then when it was complete we opted to see if he could swim the length of the pool (25 yds) to join the Lake Central Barracuda's..... www.lcbswim.com He made it and has been swimming/training for the last month. It is wonderful exercise and low impact, which played a huge decision on our behalf. He will compete in his first meet in a couple of weeks at LC. He is nervous but it's all a learning experience! He will do fine.

At our appointment though we did learn that he has more tight muscles...achillies tendons and his hamstrings. He is also weak in his arms and legs. With all the PT he gets and exercise with swim, it's hard to believe. We also were told that he has Scolliosis and we will continue to watch it for now. He has a 11 degree curvature of his spine previously it was 9 and was not considered Scolliosis. It's a lot to understand WHY and I am questioning it every day. I will say though he is doing great and has a wonderful outlook....LOL...he just goes on and does what he needs to do PLAY!!!

Well that's our update on Tanner! If you want to you can still visit my Live spaces page at http://alliehay.spaces.live.com/ i don't blog much anymore but there are some pics on here.

Or check out my myspace page http://www.myspace.com/hayalice I don't have many blogs but there are always updated pictures on there and a song or two... :o)

Would love to hear about you and your family drop me an email soon.

Hugs!

and

Ciao :o)

Alice

I heard one of the spy kids movies towards the end reveals that the old
sister needs diapers at bed time.
anybody know of any other movies that involves bedwetting or about
bedwetting?

I guess I am one of the few. I met my wife last year on line. I was
able to conceal my problem from her till I had used one of my last
diapers, we were out of town visiting her family and we were 25 miles
from her parents home and I did not have any extra diapers on me so I
had to confess to her about my problem. She excepts me for she
understands that I have a problem and we were trying to address the
issue till recently. I wet the bed sometimes but I have problems with
my bowels. which sometimes I dont make it to the bathroom in time so I
wear a pull-up to work and a diaper to bed. I use the brand Member's
Mark from Sam's club and they work really good. If you have any
questions feel free to e-mail me?
Thanks
Robert

You are such a good son and a caring person. I am sorry you had to come home and see her without food or money. We will certainly keep you both in our prayers. Take some much needed time for yourself and enjoy!!!!

Beth

Brian <bbaker904@...

Hi everyone. I'm home for the first time in 5 weeks. What a surprised
when I checked in on my mother. No food in the fridge and no money. I
gave her 400 dollars and we went out to eat. My mother doesn't tell me
when things aren't going good. I guess this has a lot to do with my
father slowly passing. Everyone, please don't do this to your kids when
they are older. That shook me up. What if I would have been gone
another week. Maybe cat food for diner, if not already. So my time will
be spent with her and some free time for myself. I'll check the board
at night only. Take care, and say a prayer for my mother please. Brian

Beth Lunsford

Tanner Mgt.

Marketing Director

(270) 298-4646, ext. 102

128 N. Main Street

Hartford, KY 42347

For when I go swimming I don't wear anything. When I get back home
again I change. I have to wear a diaper every other time.
Melissa

Hi Kristy,
It is hard not to feel bad that things weren't checked out earlier, but really honey you shouldn't. That wont help anything now, I struggled with this as well, and we as parents have no idea that there is something like perthes out there. At first I felt very ignorant, and guilty, but I realized, and you'll here other parents say it, that most of the time, leg pain is from rough play, strained muscles, or growing pains, and that is what I thought as well. And For the most part, that is a lot of family physicians will tell a parent to. Because its just so rare...and if there is no obvious signs to the touch, or alignment they go for the most obvious, simple diagnosis. Luckily your sons was caught on accident!
You will find that this site makes you feel like its not so rare, and its very informative. I am not very knowledgable yet, on how to answer your question. Does he limp a lot so the pain may be from over use of his right leg?
Did they do an x-ray on both legs? I am interested to see what other parents advise might be for you...
Hang in there Kristy...you've come to a great place.
Katrina/Ashton(4)
On 5/24/07 7:03 AM, "Kristy" <kristysigman769@...

Hi,
My name is Kristy and my son was dx last year with LCPD. We caught it
by accident while he was in the hospital. He is 12 years old. It is
suppose to be in the healing stage. He has complained with his legs
hurting him for a long time, but we blew it off as growing pains or
rough play. I feel guilty now because we didn't have him checked out
sooner.
He has had X-Rays and now today he will have an MRI.
The problem is that he has it in his left side and it is his right
side, mainly his leg (but also in his hip) that is hurting him. Is this
normal? He still complains off and on with his left side, but like I
said his right side is much worse. Could this be a transferance of pain?
He is really in a lot of pain. After the MRI I figure he will go on to
see a specialist.
Kristy

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For those ladies who wear inserts, what do you do when you put a
bathing suit on and go swimming? Wear one? Don't wear it?
Thanks

Hi everyone. I'm home for the first time in 5 weeks. What a surprised
when I checked in on my mother. No food in the fridge and no money. I
gave her 400 dollars and we went out to eat. My mother doesn't tell me
when things aren't going good. I guess this has a lot to do with my
father slowly passing. Everyone, please don't do this to your kids when
they are older. That shook me up. What if I would have been gone
another week. Maybe cat food for diner, if not already. So my time will
be spent with her and some free time for myself. I'll check the board
at night only. Take care, and say a prayer for my mother please. Brian

Hi,
My name is Kristy and my son was dx last year with LCPD. We caught it
by accident while he was in the hospital. He is 12 years old. It is
suppose to be in the healing stage. He has complained with his legs
hurting him for a long time, but we blew it off as growing pains or
rough play. I feel guilty now because we didn't have him checked out
sooner.
He has had X-Rays and now today he will have an MRI.
The problem is that he has it in his left side and it is his right
side, mainly his leg (but also in his hip) that is hurting him. Is this
normal? He still complains off and on with his left side, but like I
said his right side is much worse. Could this be a transferance of pain?
He is really in a lot of pain. After the MRI I figure he will go on to
see a specialist.
Kristy

Thanks for sharing that with us. It is probably the one thing that should not be thrown in your face. If she doesn't like the diapers, she should leave immediately [because you can't change that], otherwise she should stay and not throw them in your face each time you argue. Those are the two healthy options you have, everything else would allow for a dysfunctional situation that may likely end anyway. Your parents don't sound very understanding either. My parents are like that and I have no choice but to have nothing to do with them. There is definitely something wrong with the world sometimes...

When I was 12, I had to go into emergency surgery for a burst appendix. I awoke with a catheter in me. I had no idea what was going on, had tubes coming out of my stomach as well, for drainage. It was quite an experience. After being there for a week, they took out the catheter. My eurethra was very small up till then. I was too small for the tube they used. When the doc started tugging, I could feel things tearing, and excruciating pain. He told me to be a man, and yanked it out.

To say the least, it hurt. A week after I got out of the hospital, I was right back in due to a massive infection from the previous surgery. My experience with the catheter the second time wasn't any better than the first. I did suffer from accidents. My mother and stepfather were less than understanding. I was teased and humiliated for it. I didn't wear diapers for my problems, but I did stuff socks, toilet paper and other things down my underwear.

I guess that growing up in the country, I was rather ignorant about a lot of things. On the plus side, living in the country made it possible for me to step behind a tree. Being a boy, I could slip my hand in my pocket and clamp things shut till I could get to a safe place to let it go. I often slept with a garbage bag under my sheet to keep my mattress from getting damaged.

When I was about 15, I found Depends, and bought some. My mother found them and really came unglued. I had some degree of control, though I would wet at night periodically. I did also keep cups with lids handy that I could pee in when I had an emergency. I remained fairly continent up till last fall.

I had a motorcycle accident, got rear-ended by a Lexus while travelling up I-205. I bounced and skidded, but didn't break anything. I did get a lot of soft tissue damage, and back pain though. My incontinence got much worse at this point.

Since I don't have good insurance, I'm sure that I got the brush-off from my doctor about the whole thing. I can manage when I'm around the house, but I began to realize that over the years, I've often kept myself dehydrated to keep from peeing. I've also kept from wanting to leave the house for fear of an accident.

Since last fall, I have gone mostly 24/7 in diapers. I feel safe. I feel better about it than I have in a very long time. I was all worried about wearing a diaper in public, but I've been just fine. Fortunately I had a chance to try many different products before venturing out of the house, while recouperating from my accident. I did have one problem when I put a pair of pullups on inside out.....but that's another story.

I do enjoy wearing them from time to time, because I feel safe. It's a good feeling. My girlfriend doesn't really understand. She's not very supportive, and when we fight, she can't seem to keep from throwing it in my face. It would be nice to have more support, even someone just to talk to.

Take care,

Matt

why is it so hard to find thar spical someone?i try going out and
meeting people,but do to my incontinence it's kinda hard too do.i wear
diapers 24/7 and have no control over my bladder.i have met few girls
one was just down right mean and the other one was couldn't deal with
it at all.i just have to deal with being singal for now.the thing that
get me is why people judge us diffently then other people.what's so
wrong with wearing diapers???it's ok to wear diapers,there just like
underwear in a way.catheters why?and are they painful.i'm not that
crazy about catheters at all,i think diapers work best for me.

By the way, if you go on google to look at a spreizhose, I'm only
talking about diaper covers called windeln. That's german for diaper.
Brian

Two months ago I had a Foley catheter put in as part of
prostate surgery; I had it in