World Wide Web

Hi all. Brian has settled down, thank goodness. I have a question. His
PE at school has a question. What type of exersize should he avoid?
They are not letting him do anything during his physical exersize
class. I just wondering if he should do any of the exersises or just
what untill the doctor says it's ok. His karate class has him do all
the streching. But his instructor keeps him from jumping or kicking. I
will admit his arm strenght sure is strong. He likes to show off how
strong he is now. He even broke a cement block which realy amaized his
instructor. Anything you all can tell me will help. Debbie

go to Google and type in Adult Diapers

On 1/28/07, Fred Strout <frdstrout@...

Jon
Do any of the manufactors have web sites and if so can you post them Fred
dahmnater <dahmnater@...

Rant away Debbie, I have a nine year old boy also, but he doesn't have Perthes, just a brother with it. My nine year old thinks it is his job to push me to the edge. I wish that the would just buy me an new Edge (new car by Ford) Something about this age, such a sense of independence is developing inside them. He is old enough to make choices, hopefully making good choices is important to him. Try a tournament with the video games with the long weekend. You will be okay, Take some time for yourself, you all have been through so much. Take care.

Jenny/Jared 7
Debbie <debfmly@...

Boy I'll tell you, Brian has been an absolute animal. He wants to do
everything he not allowed to do. To beat all, his older brother has
been pushing him into doing the things. I guess that means he's doing
better but it's driving me nuts. I finally got threw to him last night.
I still have him wear the brace at night. When putting it on, I told
him if he didn't stop running and jumping, I would make him wear the
brace all day again. That got his attention. You would think a 9 year
old wouldn't want to got back into a cast. Not this kid. He screws
around all day and cries the next day because his legs hurt. Well, gee
wiz, what do you expect. He'll learn. One of these days he's going to
have a few bad days in a row. Then maybe he will listen. Sorry for the
rant. It's just drives me nuts some days. Debbie

I am 46 years old...have had a problem with incontinence my entire
life. It began as bedwetting..(I don't think I have ever had a dry
night in my life).
In my 20's, it progressed to frequent dribbling..and soon became
enough that I would find myself wet and not having had the sensation
of wetting.
In my 30's..after I began wearing diapers to cope with this, I began
to see specialists.
I have had every test you can imagine..
I have had Drs tell me they are confused..
I have had Drs tell me that they have no idea why I cannot control
my bladder.
I have had Drs tell me I am lazy.
There is no way on Gods green earth that I would choose a life in
diapers.
I am in exceptional physical shape otherwise..work out every
day..don't drink..don't smoke, am not overweight.
Having had no other choice, I have accepted it..learned to cope with
it..and to adjust to the realities and difficulties associated with
being in diapers 24/7.
I have decided against any surguries..I have heard too many stories
about surgurys gone wrong.
I have my own business..in food service related industry..so risking
an accident with a catheter bag is out of the question.
I have recently moved to NY and am going for a regular
checkup..which is wise at the age of 46..
I do NOT want to go through this whole mess again..
"Why are you settling for life in diapers"?
"Why don't you do something about it"?
Just when I think I have dealt with the acceptance piece, someone
comes along with some comment.
What can I tell my new Dr regarding this without going through the
whole nine yards again?
And..
does anyone else have a case of incontinence that is stumping Drs.
Thanks for your feedback...
Jon

In all the years I reseachered about perthes, I never could figure
why doctors suddenly said braces don't work. I found a study done by
surgeons wrote saying braces don't work. I wrote to then asking what
type of brace did they use because there is more than one style of
the scottish rite brace. They couldn't answer. I asked then how long
and often the children used the brace. Again, they didn't know. I
wrote to a bio-engineering school if anyone ever study about the
scottish rite brace. Again the answer was no. I even wrote to an
english doctor of orthopedics and he couldn't answer what the
findings were based on. So I wrote back to the study doctors how
they found the findings. They retracted about brace usage on the
next study. Now doctors are finding out, Like Paley, that
containment is neccecary to prevent the dysplasia to prevent hinge
impingment. Either by brace or surgery. The same thing that got me
in arguments years ago. Ever body thing roam is the answer but only
one part. Please feel free to print this and share this with your
doctor. I would love his opinion.
By the way, there is a mother on the hip-baby group looking for a
doctor in the Denver area. I asked her to come over but you may want
to check it out. Brian

That was a pretty good joke for an eight year old. I just thought I would let you know, I chatted with Jareds doctor about some of the other Perthes kids in his practice. Right now he has four or five who are not real candidates for surgery but would probably benefit the most from braces. I thought you might like to hear that.

Jenny/Jared 7
Brian <bbaker904@...

Hi gang. I hope your staying warm. I met a family traveling to
california with a boy in a scottish rite brace. Of course I had to ask.
Sure enough, perthes diagnosed a year ago and has been wearing the
brace for 6 months. I told them about the groups and maybe they will
join. The 8 year old told me a joke. I hope it makes you smile.
Why a people from New York always so mad all the time? It's because
the light at the end of thier tunnel is from New Jersey.. lol
I wasn't trying to pick on anyone. It sure made me laugh. Brian

Hello Kelly,
I posted this in other groups I am in as well, but
thoght I'd send it to you as well. This solution
allows you to buy cheaper disposables but still avoid
leaks. Hope this works for you. I know how miserable
waking up in a wet can be.
First a little background on my incontinence, for
those that don't know me. I became incontinent due to
nerve damage caused by Eosinophilic Cystitis when I
was about five. They didn't even know what it was at
the time because it was such a rare disease. Because
of this I often don't know I have to go until it's too
late. In the daytime if I am close to a bathroom I can
often make it so I tend to wear Tena Extra with a
doubler. If I am going to be away from the bathroom
for prolonged periods I will usually wear a Molicare
or Abena XP.
However at night I am a pretty deep sleeper so I
almost never wake up in time and due to the nature of
my incon I have voids that are somewhat akin to a dam
bursting. I am also a side sleeper, so I have dealt
with many leaks when using disposable products. I
found that using thick gauze cloth diapers alleviates
this problem. Unfortunately they are expensive and
take forever to dry. So I have been trying to find a
better solution. For the past couple months I have
been using a cloth-disposable hybrid setup. I put a
couple toddler cloth diapers (usually gauze) folded
into my disposable. I then put a KINs terry-lined pant
over the top. I am happy to say I have only had one
minor leak in 2 months using this method.
I like it because the toddler cloth are pretty cheap
and they dry in one dryer cycle. They also promote
wicking so the whole disposable can be used and of
course they add quite a bit of absorbency themselves.
I rarely have any leak out into the terry-lined pants
so even w/o them I think this might be a good solution
for you heavy night-wetters out there.
-Darin

Getting a listing of the various Mgf. companies would be good. There are several brands I have never tried as the cost is prohibitive to buy a case and then not like them. Would love to sample them first. PghDave

Matt

The same thing happen to me when I got in a hurry and put my Tranquility pull-ups on inide out. And just like you I soaked myself. In my case I was in church. I also was lucky

because I was wearing black slacks so it was not to noticeable. Was curious to know how old you are and how long you have been incontinent. I am 26yrs old and have been incontinent for 7 yrs as a results from being in a car wreck. Would like to hear from you.

Have a great day. Fred frdstrout@....
dahmnater <dahmnater@...

Anyone ever have an accident? Hard to imagine one of us who hasn't
lost it at the wrong time, or had an equipment failure.
I went to lunch with a friend at the mall. We were sitting and
eating, when I realized I really had to go. I usually keep an eye
out for where the nearest restroom might be. From where I was
sitting, I couldn't spot one.
I thought, "Well, I'm wearing protection, I should be ok."
Earlier that morning, I had made quite a mistake. I had slipped into
a pullup, and then removed it a few minutes later. When I put it
back on, I was in a hurry, and somehow managed to slip it on inside
out. When I lost it at the food court, all the absorbent parts of
the brief were on the outside!
I did manage to find the bathroom, and tried to do damage control,
but it was a disaster. I hadn't brought spares with me, thinking I
wasn't going to be gone long. This wasn't how I had planned to tell
my friend about my incontinence. She was understanding, and admitted
she'd had an accident or two in her time.
Other embarrasing moment. Sitting in a quiet room with a friend,
when suddenly a tape pops....
The cold makes me let go every time.....it's really cold here
lately.
Matt

Boy Debbie. Sounds like a hand full. Shame on him for being bad.
Tell him I wont play with him when I stop by if he doesn't stop
acting up. I'm glad you found a way to get him to be have. I'm
loading in Long beach heading threw your area again. I'll call you
if I can stop by. Brian

Jon

Do any of the manufactors have web sites and if so can you post them Fred
dahmnater <dahmnater@...

Happy Valentines day all you mothers. I hope you get some sweats from
your sweat hearts. Stay warm if you in the snow. Brian

Boy I'll tell you, Brian has been an absolute animal. He wants to do
everything he not allowed to do. To beat all, his older brother has
been pushing him into doing the things. I guess that means he's doing
better but it's driving me nuts. I finally got threw to him last night.
I still have him wear the brace at night. When putting it on, I told
him if he didn't stop running and jumping, I would make him wear the
brace all day again. That got his attention. You would think a 9 year
old wouldn't want to got back into a cast. Not this kid. He screws
around all day and cries the next day because his legs hurt. Well, gee
wiz, what do you expect. He'll learn. One of these days he's going to
have a few bad days in a row. Then maybe he will listen. Sorry for the
rant. It's just drives me nuts some days. Debbie

Hi All

I was wondering what people do to stay dry at night? I am sick of having a wet bed almost every day. Has anyone ever tried to wear 2 depends at night?

I looked up the Abena X-Plus but I can't afford them. Or should I say the sites I have looked at I can't afford LoL

Any ideas would be great.

Thanks

Kelly

Hi gang. I hope your staying warm. I met a family traveling to
california with a boy in a scottish rite brace. Of course I had to ask.
Sure enough, perthes diagnosed a year ago and has been wearing the
brace for 6 months. I told them about the groups and maybe they will
join. The 8 year old told me a joke. I hope it makes you smile.
Why a people from New York always so mad all the time? It's because
the light at the end of thier tunnel is from New Jersey.. lol
I wasn't trying to pick on anyone. It sure made me laugh. Brian

I can't understand how you can say that. External caths nearly always
leak and you have a great risk of infections with a foley cath. No one
should just use a foley cath. They are useful when a dr says you need
one. You are risking a UTI if you just decide you want to use one.
Wearing some type of a diaper is much better than risking leaks with
an external cath or UTI's with a foley.

I find external caths and foley caths to be a great Alternative as well

Anyone ever have an accident? Hard to imagine one of us who hasn't
lost it at the wrong time, or had an equipment failure.
I went to lunch with a friend at the mall. We were sitting and
eating, when I realized I really had to go. I usually keep an eye
out for where the nearest restroom might be. From where I was
sitting, I couldn't spot one.
I thought, "Well, I'm wearing protection, I should be ok."
Earlier that morning, I had made quite a mistake. I had slipped into
a pullup, and then removed it a few minutes later. When I put it
back on, I was in a hurry, and somehow managed to slip it on inside
out. When I lost it at the food court, all the absorbent parts of
the brief were on the outside!
I did manage to find the bathroom, and tried to do damage control,
but it was a disaster. I hadn't brought spares with me, thinking I
wasn't going to be gone long. This wasn't how I had planned to tell
my friend about my incontinence. She was understanding, and admitted
she'd had an accident or two in her time.
Other embarrasing moment. Sitting in a quiet room with a friend,
when suddenly a tape pops....
The cold makes me let go every time.....it's really cold here
lately.
Matt

after trying differern brands of adult diapers and not finding one that
works 100% I tryed a external catherter with a leg bag for day time and
a larger bag for night time when I am sleeping.
this has helped keep my pants and bed dry more times than not.
you should considre trying this yourself.
good luck!

Tena does make protective underwear but they are made
for use by women olny depend makes protective
underwear for men and women
Tim

I currently have been wearing depends adjustable briefs. they are pull
on style, but, you can also then adjust them with the tabs/tapes. They
have an eleastic side, so, if i want to use the restroom normally, i
easily can. I just dislike the whole idea of wearing a "old persons"
diaper brand, and, i loved tena when i had thoes, but, they had normal
tapes and no give, so, they wouldnt allow me to just pull down the
front to use the bathroom. I saw tena had a pull-on style diaper, but,
it didnt seem adjustable. Im a 31 inch waist and 150lbs, so, i dont
think it would fit as snug as the picture shows. Does anyone know if
tena makes something LIKE the depends diaper? or maybe another brand?

That means that you can see through his bones and he has signs of
arthritis on his left side.

I don't understand what all of that means but I sure am thinking/praying for you guys!

Beth

Kerry <lark27@...

I have some discouraging news. His xrays show that irregularity in
the lucency of the femoral head, and a contour deformity. Also they
are concerned about a small left sided joint effusion (signs of
arthritis). They are recommeding that we have another MRI. I'll just
wait to see what the doctor in Cincinnati tells me.
Please just keep us in your prayers.

Beth Lunsford

Tanner Mgt.

Marketing Director

(270) 298-4646, ext. 102

128 N. Main Street

Hartford, KY 42347

I have some discouraging news. His xrays show that irregularity in
the lucency of the femoral head, and a contour deformity. Also they
are concerned about a small left sided joint effusion (signs of
arthritis). They are recommeding that we have another MRI. I'll just
wait to see what the doctor in Cincinnati tells me.
Please just keep us in your prayers.

Hi Brian, Glad to hear you feel a little better. Keep resting when you can and drink plenty of fluids. Good to hear from you, you sound better.

Jenny/Jared 7
Brian <bbaker904@...

Hi everyone. Thank you for the prayers. I starting to get better but
have a ton of catching up to do. I will be on line as much as possible
sunday. I just stopped in today for a quick look. Thank you so much for
all you are doing. May god help and bless you all. Brian

just to say hi you do a great job my pc beed down but im back
yours stphn

my name is jamie i've been in adult diapers since i was middle/high
school.i've seen alot of doctors and one of them told me it's in my
head.and rest of them said it was overacttive bladder.what i have is
functional,or mixed incontinences.i'm know 36 year old and still
wearing diapers today.if you have to wear diapers 24/7,i think it's
alright too wear them.it's just a part of life. that's what i
belive!!!.so if anyone interest in emailing me please do so.that's just
a littel somthing about me.

Hi Everyone,

Has anyone else not been getting any mail the last day or so? I haven't received anything from the group since Sunday.

Thanks,

Jack Kramer

Hi everyone. Thank you for the prayers. I starting to get better but
have a ton of catching up to do. I will be on line as much as possible
sunday. I just stopped in today for a quick look. Thank you so much for
all you are doing. May god help and bless you all. Brian

hiya hen im shocked reading your message,you will need to take him to
your doctor before it gets worse.im sure with pt to strenghten his
muscles which if not strong enough could lead to incontinonce.i hope
that every gets sorted for you xtina--- In Information-

haveing poor bladder controw is not a good to have at any age or for
men or women or childern.
you might want to try external catherters with a leg bag for day time
and a floor bag for night time.
or your D octor may be able to help you with sum meds.
good luck.

Hi Meridith, It could have something to do with the position of the cast. At the lower back, on either side of the spine, there are trigger points that affect the chemicals the body produces to help control the urge to release urine. Sometimes these areas can become irritated. needing some massage or hot or cold packs once or twice a day. The other thing I would be concerned about is wheter or not Nate is developing a UTI. Hopefully it is just the stress of the cast, something you can work on whenever you get a chance to rub his lower back. Take care, keep up the good work. You can and will get through this.

Jenny/Jared 7
Meridith <mom2nqc@...

Something weird is going on here - Nate is 8 days post op after his
triple pelvic osteotomy. Everything's been going great, the surgeon
said at his post-op appointment that he's recovering faster than most
kids do. That said, we've had two incidents in the last three days
where Nate has wet himself. He has a bladder of steel and hasn't had
any type of toilet accidents since he turned 3.
I'm perplexed - both times he was lying down playing a video game. I
can't get him to articulate if he felt the urge to go and ignored it
or not. I seem to remember someone posting once about kids having
incontinence problems along with Perthes.
I thought about calling the doctor, but thought I would check here
first. Any thoughts?
Thanks in advance....Meridith

I recently had an interstim device implanted that is a remote control
device for incontinence that shocks the bladder like a tens unit to
help control bladder contractions. The first two days it seemed
helpful, so the dr went ahead with the second stage of permanently
mounting it under the skin of my right buttock. Now though i have to
turn the device almost all the way down because it stimulates my
chronic back pain from lumbar spinal stenosis excessively , and it has
zero effect on either of my incontinence issues. The dr said they are
90percent effective in stopping all urinary incontinence. Am I just
the unlucky 10 percent?Was it too much to hope this would end my need
for diapers once and for all? Has anyone else had any good or bad
experiences with interstim?

Something weird is going on here - Nate is 8 days post op after his
triple pelvic osteotomy. Everything's been going great, the surgeon
said at his post-op appointment that he's recovering faster than most
kids do. That said, we've had two incidents in the last three days
where Nate has wet himself. He has a bladder of steel and hasn't had
any type of toilet accidents since he turned 3.
I'm perplexed - both times he was lying down playing a video game. I
can't get him to articulate if he felt the urge to go and ignored it
or not. I seem to remember someone posting once about kids having
incontinence problems along with Perthes.
I thought about calling the doctor, but thought I would check here
first. Any thoughts?
Thanks in advance....Meridith

Jon,

Have you tried Babykins Adult Line yet? They have two great all in one products,

one goes on like normal diapers, the other is a pull on. Great terry/cotton absorbency (19 fluid ounces) inside and a waterproof outer layer. Available in white only. I'll be getting mine next month with my Income tax Return.

http://www.babykins.com

For those who want more color in their diapers check their full adult line.

On 1/21/07, Jon <quickkid20022000@...

Hi guys...
I am new to the group and just wanted to make an introduction. I am
a 45 year old professional gay male. I have been incontinent for
most of my life to some degree. Initially, it was primarily an issue
in the evening, which required me accepting the fact that I needed
to wear diapers while sleeping. During the day, there is usually
just a constant drip, that I dealt with in various ways, most
unhealthy.
Lately, things have gotten worse and the dripping is pretty much
continous. I still have awareness when my bladder is full, and use
the bathroom..but in between these full sensations, there is enough
continual dripping that requires me to now accept the fact that I
need to use protection during the day as well. The Dr. has only one
remedy..medication, which I am not eager to try because it will only
have mixed results at best, with negative side effects.
I lead a very active life and am determined that this is not going
to change anything. I work out every day..am in great shape and get
more than my share of admiring glances.
I really don't have an issue wearing a diaper during the day, while
at home, but am having to get pretty creative while out and about. I
do not want to have to resort to wearing baggy, dumpy looking
clothes either. The adjustment has been difficult at times, but
rewarding in others. Rewarding in the sense that I have determined
that the best wayto deal with incontinence is to accept it, do what
you can about it..andmove on with your life. I also have the
assistance of a great partner who is extremely supportive. I look
forward to gettingto know others on the board.
Peace..Jon

John Lameck asks if his lack of control is normal. Surely the
position for John, and with most of the people on this group is that
it should be described as "unusual", not "abnormal". The world at large
seems to consider that "normal" behavior is to piss no more than five
times a day in clean toilet and not at all during sleep, and this is
what you should do, aand if you dont conform to this, you are either
wicked, or you need to be "cured" or maybe both. Well, the fact is that
for many of us, there is nothing to be cured, and for my own case, I'm
convinced that the "cures" that I have heard about, either by drugs or
operations, do more harm than good, and I'm happy to go on being the
frequent pisser that I am. Like so many other people, I was made to
feel ashamed of my wetting when I was younger, but I had to good
fortune to complete my growing up in a sympathetic environment which
made me realise, as John says, there is nothing to be ashamed of.

Hi guys...
I am new to the group and just wanted to make an introduction. I am
a 45 year old professional gay male. I have been incontinent for
most of my life to some degree. Initially, it was primarily an issue
in the evening, which required me accepting the fact that I needed
to wear diapers while sleeping. During the day, there is usually
just a constant drip, that I dealt with in various ways, most
unhealthy.
Lately, things have gotten worse and the dripping is pretty much
continous. I still have awareness when my bladder is full, and use
the bathroom..but in between these full sensations, there is enough
continual dripping that requires me to now accept the fact that I
need to use protection during the day as well. The Dr. has only one
remedy..medication, which I am not eager to try because it will only
have mixed results at best, with negative side effects.
I lead a very active life and am determined that this is not going
to change anything. I work out every day..am in great shape and get
more than my share of admiring glances.
I really don't have an issue wearing a diaper during the day, while
at home, but am having to get pretty creative while out and about. I
do not want to have to resort to wearing baggy, dumpy looking
clothes either. The adjustment has been difficult at times, but
rewarding in others. Rewarding in the sense that I have determined
that the best wayto deal with incontinence is to accept it, do what
you can about it..andmove on with your life. I also have the
assistance of a great partner who is extremely supportive. I look
forward to gettingto know others on the board.
Peace..Jon

Guten Tag Peter,

Ich spreche deutch nicht gut. Welcomen.

aufschreibersehen,

Matt
peter <neverendinglove3000@...

haette gerne eine inkontinente freundin. finde windeln einfach
erotisch.

haette gerne eine inkontinente freundin. finde windeln einfach
erotisch.

I was in a Catholic School for Boys when I was a child (11-16) [Jan 2 1960-June 30 1964].

Yes what you've heard about those Schools and what the Clergy who ran them did to

us boys there is true! I was raped my second night there and every night thereafter.

At just past 13 y.o. (April 1961) I started wetting the bed due to the sexual abuse I was suffering.

They just put me into cloth diapers/rubber pants 24/7. Suffered a lot of humiliation from the other

259 boys in the School because of it. But worse, I became Incontinent and when I was finally

sent home on June 30 1964 I had to be toilet trained all over again not achieving that until I

was almost 19.

Now after just over 7 months back in diapers 24/7 (June 18 2006 till now) I'm once again

becoming Incont. I'm trying to use the toilet to eliminate my bodily wastes there still, but I

have NO control of my bladder. I'm now filling my diapers at least once a day.

Is this normal, and I am I truly becoming totally incontinent again?

I think I have posted on here before but I belong to a couple different groups so really can't remember. I just know that I am really frustrated and severely depressed. It is a struggle just to get out of bed in the morning but I force myself to, if only for a few hours, before crawling back into it and hiding from the world.
I am really struggling with this. I have battled mild incontinence since I was 26 and got baptized in a polluted lake. Up until last year, the leakage was barely noticeable to me. It took a while but I adjusted to wearing pads, moved on, had a social life, got my degree in psych, etc.
But last year, something happened and the leakage got worse. I have no clue what but now I am up to wearing serenity ultra pads, which provide good protection at this point, even though I always feel wet and suffer the paranoia that people are looking at me, etc. Most of my leakage is caused when I am walking or bending, but I have minimal problem when sitting or laying down.
My first urologist is treating me for overactive bladder and is the biggest jerk known to man (he told me BEFORE he ran any tests that I would probably just have to learn to live with the incontinence because he didn't know that much about the female anatomy). I am waiting to see a urogyn the middle of next month.....
Funny thing is, when I went in to get tested for fibroids to eliminate that being the problem, I was told I would have to drink 32ounces of water and hold it for an hour before the test. I called them back and told them I had a small bladder and there was no way I could do that. Anyway, they found another way to complete the test but the girl scanned my bladder anyway to see how full it was......it was COMPLETELY full, and I hadn't had anything to drink since 11 the previous night, and this was now 1:30pm.
What is up with that? I wonder if I have an underactive bladder instead if that is possible? Some days it seems like I am going to the bathroom every 30 minutes to an hour, others, I just seem to leak and not go very much. Is there anyone else on here with just leakage as opposed to full blown incontinence?
When I go to the urogyn, they are going to do a bladder study where they fill my bladder, hook me up to computers and then I have to empty into a special potty chair. Has anyone else had this done? I am afraid I will not be able to do it as I also have a shy bladder when anyone is in the room. Should I ask them to cath me first to see how much urine is in there before they do the test? I will not even meet this doctor before they do the test, which I think is strange. Sorry this is so long, but I am pretty much at the end of my rope. I have dealt with disabilities and problems all my life (have mild cerebral palsy, scholiosis, hepatitis b, fibromyalgia) but this has darn near made me give up. I am out of contact with most of my friends now because this is just not something I can come out and share. I am so frustrated I wish sometimes I didn't have a darn bladder. At least I would be dry. I also have continual vaginal burning and irritation due to this that is driving
me up a tree and my first urologist accused me of having rough sex the night before! Excuse me, but I am one of those.....um....oh, this is hard.......almost 40 year old virgins you never hear of anymore.....Would greatly appreciate some feedback from anyone.
Cheryle Ann

where r u located?

On 1/13/07, Jasoni VanBeveroni <jvanbeveroni@...

I lost my Dl playmate awhile ago looking for another one if any girl or guy is interested email me for specs and question, single lonely white male..

Why is almost half of this group made up of members with bouncing
accounts? This could be one reason why people can't tell who are
members with legitimate IDs. It might attract more spam also. Just
wondering.

I lost my Dl playmate awhile ago looking for another one if any girl or guy is interested email me for specs and question, single lonely white male..

Hi there,
I don't want to diminish what you are feeling or discount it in
anyway and I hope me on my soapbox won't be offensive. :) That
said, my 5 year old had a petrie cast last November and is now in a
spica cast (one week down, five to go) following a pelvic
osteotomy. He has never been treated with anything but care,
sympathy, and consideration by his classmates and friends. He's in
kindergarten and at first I was heartbroken by the thought of him
not being able to do what the other kids were doing and having this
completely color his kindergarten experience. It was and is a non-
issue. He participated in the classroom in the way he could. His
teacher and classmates made sure he was included in every way. It's
been an amazing experience for him and his classmates in learning
what it's like to be different and have limitations, albeit for a
short time. The kids have been amazing to him.
I don't think he's ever seen himself as disabled because no one else
is seeing him that way. It's temporary, it's something we have to
deal with, but it's life. Life isn't always the way you want it to
be and not all kids look the same and have the same abilities.
It's difficult, but you make the best decision medically and know
that whatever it is, your son will get through it. They adapt to
these things much better than we do. Nate has been pretty unfazed
by the whole experience and the love, kindness, and compassion that
we've received from his classmates and their families has been
overwhelming. Even the older kids - the 4th and 5th graders - all
know him now from seeing him around school and think he's a rock
star! They all come up and ask him how he is. It's been great.
Again, I don't want to dismiss or diminish what you are feeling. I
remember being really upset the night before his arthrogram and
petrie cast because I felt so sad for the things he wouldn't be able
to do. That lasted for about a day when his positive attitude about
the whole thing took us all to where we needed to be emotionally. I
just want to reassure you that while it seems very overwhelming, we
all get through it and it's a bump in the road. It's a great
opportunity to teach our kids about handling tough things. I wonder
if at their ages if they'll even remember this when they're older!
Take care, you're in my thoughts.
Meridith

http://diapersrus.4t.com/

Your story sounds almost exactly like mine. My son will be 4 next month - when was your son diagnosed? My son begins preschool in August too and I am worried to death about it. Your are right about having the feelings you have but we will all get through it.

Beth

Kerry <lark27@...

Thank you everyone for your thoughts and prayers, we are going to need
more. I found out from his Pediatrician yesterday that he wants us to
schedule a appointment with Cincinnati Children's Hospital ASAP, not
to wait a year like we had originally planned to do. He had a xray on
Tuesday and the results show no signs of change. But he didn't go
into much detail, just saying we need to contact them and make the
appointment. I feel like I have hit a rock wall. I don't want my son
to be put into a petre cast. He is starting pre-school in a few
months and I know how cruel kids can be. I also don't want him to
feel like he is disabled, because he really isn't, he's pretty much
like any other 4 year old little boy except he can't run or jump.
We just really need a miracle. I know that God performs them
everyday. Please pray for us.
Thanks

Beth Lunsford

Tanner Mgt.

Marketing Director

(270) 298-4646, ext. 102

128 N. Main Street

Hartford, KY 42347

Thank you everyone for your thoughts and prayers, we are going to need
more. I found out from his Pediatrician yesterday that he wants us to
schedule a appointment with Cincinnati Children's Hospital ASAP, not
to wait a year like we had originally planned to do. He had a xray on
Tuesday and the results show no signs of change. But he didn't go
into much detail, just saying we need to contact them and make the
appointment. I feel like I have hit a rock wall. I don't want my son
to be put into a petre cast. He is starting pre-school in a few
months and I know how cruel kids can be. I also don't want him to
feel like he is disabled, because he really isn't, he's pretty much
like any other 4 year old little boy except he can't run or jump.
We just really need a miracle. I know that God performs them
everyday. Please pray for us.
Thanks

Brian, take care and get better. You've helped so many of us and I
think your decision to add Jenny as an owner was great. There are
other groups but yours is the most informative. So take your time
and come back to us soon. I'm praying for you and my Brian blew you
a kiss. Debbie

Hi and wecome to all the new members here. I'm sorry but I haven't
been able to watch the board much. Right now I'm all drugged up because
of a cold. I hope the information here has helped you. My prayers are
with you all. Brian

We all understand and will be thinking about you! What I tell myself sometimes is "If God brought me to it, he will bring me through it."

Beth

Brian <bbaker904@...

Hi everyone. Things have been going very down hill for me. I asked
Jenny to be an owner. I haven't deleted myself but I'm struggleing at
the moment. I have many medical problems going on and may need surgery
soon. I'm also sick and stuck in a truck stop un-able to drive at the
moment. I'm doing all I can and the home situation is getting worse. I
hope to be back up and going strong soon. I hope my doctor can find
what my problem is also. I will be on the group less often for a little
while untill then. I'm so sorry to all of you. Brian

Beth Lunsford

Tanner Mgt.

Marketing Director

(270) 298-4646, ext. 102

128 N. Main Street

Hartford, KY 42347

You know I used to feel the same way for a while. Felt that it was weird that before I go to bed I put an a fresh nappy and plastic pants and I know where you are comming from. It felt babyish in a way. Even though I know the alternative is to be changing the sheets at 3am. Now that I have been doing it for so long I feel weird not putting on a fresh nappy and plastic pants.

If you want to talk Anna feel free to contact me.

Hi everyone. Things have been going very down hill for me. I asked
Jenny to be an owner. I haven't deleted myself but I'm struggleing at
the moment. I have many medical problems going on and may need surgery
soon. I'm also sick and stuck in a truck stop un-able to drive at the
moment. I'm doing all I can and the home situation is getting worse. I
hope to be back up and going strong soon. I hope my doctor can find
what my problem is also. I will be on the group less often for a little
while untill then. I'm so sorry to all of you. Brian

Hi Kayren,
Thinking of you and Michael. Keep us posted on how he's doing.
Hopefully the P/T will give you the results that you are hoping for.
Take care, Meridith

We all will! Good Luck and we are thinking of you guys!

Beth (Dylan 3 1/2)

kayren <billystevens@...

Hello all. been awhile since I posted. just to let u all know, michael
had a doc appt. today. not happy w/his rom. it's only 30 degrees and he
wants it at 45, gotta start physical theropy again. just doing the
trappezze isn't working for him, his muscles r very weak also that's
why the doc wants him to start the pt again. just keep us in your
prayers. thanks all..kayren

Beth Lunsford

Tanner Mgt.

Marketing Director

(270) 298-4646, ext. 102

128 N. Main Street

Hartford, KY 42347

Anna,
Nothing personal but I deleted your photos. While I udnerstand

Hello all. been awhile since I posted. just to let u all know, michael
had a doc appt. today. not happy w/his rom. it's only 30 degrees and he
wants it at 45, gotta start physical theropy again. just doing the
trappezze isn't working for him, his muscles r very weak also that's
why the doc wants him to start the pt again. just keep us in your
prayers. thanks all..kayren

Hi Everyone, Welcome to new members from the Hip Baby group. If you
are from that group it would be great to know that in your first few
posts so we know who you are. Thanks for sharing with us. I hope we
can prove to be helpful to you and your families.
Thank You,
Jenny/Jared 7

Funny thing about having to wear nappies at night (which I do)... is
that it feels so wired... but why?
... I mean its just something you wear isn't it!... but people say arhh
yes... but it is actually somethig that normally poeple only wear as
babies... well they do have a point... BUT
..babies wear socks... so do we!
..and also, lots of people wear nappies for all sorts of reasons... I
just started looking at some photos of people around my age in
nappies... and was really encuoraged... it helped me to see that I'm
not the only one... and it stop me thinking... I must look so stupid in
this.
So, I have posted some of these pictures... not to be purvy or
anything... but just to say look and see that we are out there... and
thats fine... this is what I think support can be sometimes.
~Anna

Beth, thanks so much for your kind words. Sometimes it's so hard for
us as parents to see our kids with physical struggles when the
reality is that we are probably the ones most affected by it and
they just roll with the punches. Nate continues to be a source of
strength and inspiration for me since his positive attitude is
contagious!
Take care, Meridith

hello from uk i to would like to say president ford was a good
man as well mey he rest in peace from stphn

Hi there,
My son was diagnosed at age 5, so he's a little older but it's been
easier than I thought it would be to keep him from running and jumping
around. He was taking karate, soccer, and skating and we had to pull
him out of all three which I thought would be really hard on him, but
he adapted well. What worked for us was to focus our energy on what he
can do not what he can't. We've given him the list of things that he
is able to do - riding bikes, swimming, art projects, etc.
The other thing we've done is enlist everyone's help. All the
teachers at school, the people in the office, the recess aides, the
parents of his friends (anyone who is there when we are not) are all
aware of his limitations and they steer him towards what he can do.
We signed him up for some activities and told him "these are special
things that you get to do while your hip heals". He's been fine with
it all so far.
We've also stressed that this is a temporary situation - if he takes
it easy now, he'll be able to do all of things he wants to do again
soon. Kids don't have the long view like we do, so as long as we can
keep them focused on what they can do in the moment, that seems to
help.
Hope this helps some - every child is different, but so far this whole
thing has been way harder on us than on him! I think we tend to mourn
the things that they cannot do right now but they adapt well and will
focus on what they can do if we do the same.
Take care, Meridith

Meredith - I know this letter was to someone else but I read it and I really liked what you had to say. It even made me feel better about the whole situation!

Thanks!

Beth (Dylan 3 1/2)

Meridith <mom2nqc@...

Hi there,
My son was diagnosed at age 5, so he's a little older but it's been
easier than I thought it would be to keep him from running and jumping
around. He was taking karate, soccer, and skating and we had to pull
him out of all three which I thought would be really hard on him, but
he adapted well. What worked for us was to focus our energy on what he
can do not what he can't. We've given him the list of things that he
is able to do - riding bikes, swimming, art projects, etc.
The other thing we've done is enlist everyone's help. All the
teachers at school, the people in the office, the recess aides, the
parents of his friends (anyone who is there when we are not) are all
aware of his limitations and they steer him towards what he can do.
We signed him up for some activities and told him "these are special
things that you get to do while your hip heals". He's been fine with
it all so far.
We've also stressed that this is a temporary situation - if he takes
it easy now, he'll be able to do all of things he wants to do again
soon. Kids don't have the long view like we do, so as long as we can
keep them focused on what they can do in the moment, that seems to
help.
Hope this helps some - every child is different, but so far this whole
thing has been way harder on us than on him! I think we tend to mourn
the things that they cannot do right now but they adapt well and will
focus on what they can do if we do the same.
Take care, Meridith

Hello everyone,

I just wanted to take a moment and thank all of us for our prayers and well wishes to President Ford's family in the time of loss. I so wanted to put my uniform on and go downtown, but not being able to get my haircut until later this week that will wait for me to pay honor to him. I am very honored to be a neighbor to his great family living just minutes from the beautiful museum where he shall be laid to rest tommorrow afternoon. I have very few times in my young life of 37 been able to see such admiration and respect for a man of our nation. It was absolutely quiet as the prossesion made it's way from his named airport to our downtown area followed by a beutiful ceremony at the museum. The honor as a gentlemen he held and showed to everyone hopefully will take hold on our nations youth and they will start this great trait rolling again. May you all have a wonderful day as we will laying our great friend and President to rest on the shores of the Grand River on such a
mejestically beautiful day and time in our lives. Remember the simple man of such great instances.

take care,

Jack Kramer

SP4 U.S.Army National Guard

87-01

Rest in peace Mister President and thank you for the great deeds and leadership you gave us and our country.

babyvamp@...

" Accept me for who I am, it is me true and honestly!"

hello im sorry to hear about your little boy.have you tried a high
chair at a dinning table,with him at the table he could do colouring
activities,maybe playdough!or painting.leap pad interaction{or
leapstar}.also a baby walker or rocking chair,or cushoined play
mat.these are some ideas for you i hope they are of some help to
you.insted of telling him make sitting and resting fun time all the
time.i hope your little one heals fast and wellxour thoughts are with
youxtina
x

I thought that plastic pants should be cleaned like plastic bed sheets
just wipe clean with a damp cloth.
If you fing what works best for you thats what you use.
I do not think that anything will work 100% .
If you are lucky what ever you use may work or help some one elce.

You answered my prayers for you two. Good to hear he is doing good.
Brian

Good to hear how things went. After you bring Nate home, just be sure to manage his pain for the first few days. Stonger meds at night help everyone to get more sleep. One thing you have is cast care, we did not have that with Jared, just wound care. Sometimes when Nate gets a bit stressed you might try a warm sponge bath. That helped Jared to really relax. How many weeks will he be in the cast? When will Nate go to physical therapy again? I wish the doc would have had Jared in PT sooner, we might have eliminated some of the horrible limp he developed. That limp is almost gone since starting PT. Jared is about 10 days post op for hardware removal. He is limited weight bearing with his crutches. They told us that this surgery would be so much easier than the osteotomy. They were so right! This has been a breeze. Even managing pain was easy (after the second night he didn't even want pain meds). Sorry to hear the hospital experience has not been so good. You
should consider sending a letter to the director to have them consider a little update to the facility, make it more kid friendly and parent friendly. When Jared had his osteotomy he also was in a room with two others (they called the room an observation room, but we were in there because all the other rooms were full). The other two patients were teenage girls who had spinal surgeries for scoliosis. One family was great, the other family were very inconsiderate. Oh well, it was a good experience overall. Sorry, I'm rattling on again. Who is Nate's pick for the Superbowl? Take care.

Jenny/Jared 7
Meridith <mom2nqc@...

Home from the hospital for a quick shower and to plug back in to the
outside world! Nate is doing great. Everything went well with the
osteotomy and the doctor was pleased with the results and said he
has "outstanding" head coverage. The cast looks like it will be more
manageable this time around, but we'll see what happens.
Nate is still having a quite a bit of pain, but they feel like he can
come home today which I am all for. The hospital is the most
horrible, depressing experience that I wouldn't wish on anyone. He is
sharing a room with two other kids and everyone is in pain and the
parents all seem so distressed. It's so hard to see small kids going
through so much and parents feeling so helpless. It's sad.
So, all is well for now. I'm looking forward to us all sleeping in
our own beds tonight and enjoying Super Bowl in the comfort of our
living room. :)
Thanks for everyone's good wishes and thoughts.
Meridith

Hi Mike,
My wife always my plastic pants in the washing machine on a gentle cycle.
She uses vory liquis detergent in the wash cycle.
After there washed, she hang drys them on the line in the basement.
I've had plastic pants that I bought a few years ago, and thru this washing procedure, they still feel soft and are holding up well.
Hope this info. helps you.
I wish everyone a great weekend and a very happy, safe, healthy and prosperous new year!
Take care,
TinyTony Smiley emoticon

Ive been reading websites, forums and alike, and i cant seem to get
any clear answers. Some people say plastic pants should ONLY be hand
washed in luke warm water with ivory soap, other say you can put them
in the washing machine, other say its good to use hot water every so
often.
so, what should i do? id rather wash them in a washing machine then
hand wash everything. I dont want to ruin them either. also, when
should I wash them? everyday or wear them for multiple days?
Mike

Home from the hospital for a quick shower and to plug back in to the
outside world! Nate is doing great. Everything went well with the
osteotomy and the doctor was pleased with the results and said he
has "outstanding" head coverage. The cast looks like it will be more
manageable this time around, but we'll see what happens.
Nate is still having a quite a bit of pain, but they feel like he can
come home today which I am all for. The hospital is the most
horrible, depressing experience that I wouldn't wish on anyone. He is
sharing a room with two other kids and everyone is in pain and the
parents all seem so distressed. It's so hard to see small kids going
through so much and parents feeling so helpless. It's sad.
So, all is well for now. I'm looking forward to us all sleeping in
our own beds tonight and enjoying Super Bowl in the comfort of our
living room. :)
Thanks for everyone's good wishes and thoughts.
Meridith

Has anyone had any experience with these briefs? I have been in
either Molicare or Abena for the longest time as I wet frequently and
a high volume when I do. Are the absorbant like the others I
mentioned? I would like something that perhaps is slimmer but
absorbant still. Please let me know
Melissa

Ive seen on most every website washable diapers/washable briefs for
men (and women). these any good? CVS (www.cvs.com) gas some from
gelmart that seem good, and other websites also offer
washable/reusable briefs. They look nice, but, dont seem to hold there
own. Opinions?

Hi Lisa, welcome to the group. I wish I could answer some of the
technical questions you have. I'm still learning about all of this
too.
I can tell you that my son who is 5 had an arthrogram in November
and it was key in helping us determine our next step which will be a
surgical containment. Another surgeon recommended an MRI as well,
but once he got the arthrogram results he said it had enough
information to proceed and we didn't need to do the MRI.
I wish I could help with a referral, etc. I'm sure someone else
here can be of more help.
Take care, Meridith

Hi Lisa. I'm sorry that your family has to take this journey, but you will be amazed at how strong you are and how brave your son is. I just have a few questions. Have you seen an pediatric orthopedic surgeon, preferably one associated with a Childrens Hospital? Where in Oklahoma are you, close to what major city? We are in Denver, Co. My son Jared is 7 and he sees an ortho doc at TCH in Denver. I could send an email to Jareds doc and see if he knows of anyone in your area. Sometimes he does, sometimes he doesn't. Some families have little or no health insurance and so they go to Shriners Hospitals for care. You can consult with more than one doc, but you most likely will get more than one recommendation of course of treatment. Because of your sons age he may be a good candidate for intervention. The younger one is when they develop Perthes the longer time there is for regrowth. Being older than eight years usually indicates a need for surgery with 50% head
involvement. Has the doc indicated what stage or phase your son is at? Keeping the range of motion is a good thing to focus on, you could ask about physical therapy. Some docs do PT before surgery, some after. Sounds like what you are doing is helpful. Keeping the muscles strong is hard work but helps to keep away a limp. Better to prevent it if you can then to try to undo it later. The classification the doc gave you was based on the gap between the head of the femur and the acetabulum, (how it sits in the socket). Jared has had an arthrogram, petrie cast to return range of motion, a femoral osteotomy, and recently the hardware removal from the osteotomy. He has full head involvement, acetabulum is affected also. His femur was pushing out of the socket, so it was recommended for the osteotomy to tip the femur deeper in the socket. So far so good. Jared is 16 months into Perthes, we still have a long way to go. This is just part of our lives. We have learned to
adapt a few things, and think about our activity and how that might affect him. We have a 504 plan at school this year to make some accomadations and to cover for some absences from surgeries and hospitalization, also leaving school early counts as an absence. Start making a list of questions to ask your doctor. No doc has a crystal ball to see into the future, but most have experience on their side and can share expectations. You and your family want the best clinical outcome possible for your son, your doc should want the same thing. The up side of Perthes is that it is not life threatening, just life altering, how much can depend on attitude. You did nothing to cause this, your son did nothing to cause this, it just happened. You will get through this, but it is important to have a medical team to support you on your journey. Ask questions, get answers, being a nurse I'm sure you know how to deal with most docs. When your child is the patient you can wear your mom
hat and use your nurse knowledge. This group has many who have been through this or are in the middle of this, please ask questions, or even just vent, this is a support group to help families who are affected by LCPD. Will be waiting to hear from you. Take care.

Jenny/Jared 7
brawmerlisa <brawmerlisa@...

Hi everyone. My name is Lisa and I've been reading the posts on this
group for the last month. This group has more information than I've
found anywhere. Thank you to the owner and all who post.
I'm a nurse with 3 children and work at a retirement center. Two boys
and one girl. My oldest is 11 and was diagnosed with perthes two months
ago. I'm a little concerned with our doctor. Just one look is all he
took of the x-ray. Now he wants to do surgery. That bugs me. No further
diagnostic intervention prior. I live just north of the Texas in
Oklahoma. Can someone recommend a doctor for a second opinion. I just
don't trust what the doctor says. I would like to have an arthrogram
done first. My son can move fairly well. I started exercising him with
out the doctor saying so. It helped and he walks with less pain. Any
information would help. I do know the doctor said he was classified as
a B hip. The lateral edge is in tact with 50% involvement. Lisa

And also prevents from sweating too much. I use them in combination
with small inlays. Works fine for me.

Yes the lining keeps leaks for happening

Debbie, it's great to hear how Brian is doing. I'm sure you're
pulling your hair out trying to keep him from doing crazy things!
I understand about not continuing your membership, but I hope you'll
stay connected and let us know how you are all doing every now and
again. You've been a big help and source of information for me, so
thank you for that.
Take care, Meridith

Hi Jenny, I'm glad to hear that Jared is doing well. It must be a
relief to have that behind you now. Let us know how things go on
the 5th.
Take care, Meridith

Ive been reading people wear plastic panties w/ liners in them over
diapers..... that something anyone does? Should i concider it?

Hi everyone. My name is Lisa and I've been reading the posts on this
group for the last month. This group has more information than I've
found anywhere. Thank you to the owner and all who post.
I'm a nurse with 3 children and work at a retirement center. Two boys
and one girl. My oldest is 11 and was diagnosed with perthes two months
ago. I'm a little concerned with our doctor. Just one look is all he
took of the x-ray. Now he wants to do surgery. That bugs me. No further
diagnostic intervention prior. I live just north of the Texas in
Oklahoma. Can someone recommend a doctor for a second opinion. I just
don't trust what the doctor says. I would like to have an arthrogram
done first. My son can move fairly well. I started exercising him with
out the doctor saying so. It helped and he walks with less pain. Any
information would help. I do know the doctor said he was classified as
a B hip. The lateral edge is in tact with 50% involvement. Lisa

General sort of article
http://www.caregiver.com/articles/incontinence/incontinence_embarassed.htm

Hello Everyone. I just want to thank all of you for thinking of
Jared and for praying for him. He is doing well after the hardware
removal. He asked the doc if he could keep his hardware and they
agreed to it. The surgery took about an hour, then Jared was very
sleepy and recovery took a couple of hours. We got home around 2:30
and we all took a long nap. I think we were exhausted from all that
has been happening the past 6 months. Hopefully Jared is finished
with surgeries for several years. Jared was feeling well rested by
5:30, he asked for his crutches and was cruising around the house
asking for something to eat. It didn't take long before he was
picking on his brother Jesse. He is doing great today. He went all
night with no pain meds. This morning I gave him codeine hopeing he
would rest a while, he has been up since 6:30 this morning and it is
almost 10:00 now. He has played video games, watched a movie, and
now is playing on the computer. He has a glazed look in his eyes but
keeps on going. Maybe he will nap after lunch. He starts physical
therapy on tuesday morning. Oh, I almost forgot to tell you what the
doc had to say after surgery. No, he did not have anything to tell
us about the progress of Perthes, but he said he noticed the scar
from the two surgeries were rather wide, so he cleaned it up. I had
thought about mentioning that before but then decided that this doc
likes to do good work so he fixed what the infection doc left kind of
sloppy. There was no sign of infection at the bone, that was good
too. Thanks again, we'll keep you posted, more xrays on Feb 5.
Jenny/Jared 7

Hi, things are getting back to normal again. I had to drag out the
paddle. Brian is already trying to do things he's not allowed to do. I
guess he takes after me. Hard headed. lol..
There has been a lot I missed on the group. My power is back. Maybe
one good thing from the weather we had, I now have new phone lines so
my internet service is a little faster. Now it only takes two minutes
to send a post. That's way better than ten.
I'm not sure how much longer I will be a member here. I'm going to
miss all of you. This place has been so helpful threw all this. All the
help has made it all bearable. My prayers will continue for all of you
and I hope you have a successful future. Debbie

I will check the website out and contact her, thx for that...
well, goodnights dont specify a waist size but suggest 125lbs max and
im 155, plus, they are a little to kiddish for me. im not into these
depends i got. they r easy to use the bathroom when i actualy use a
toilet, but, arent very "good looking" with this ruffly design, and
they fit and stay on, but tend to creep lower and lower in the front.
well, bodysuits are really nice, but, expencive. $20-25 for one. i
also dont mind leotard tops, but, they can be quite the pain to get
off. i work a 40 hr job and see a lot of different people in the
office and move around a lot. i hate being in the bathroom stall
longer then i have to.
pads? ahhhh, tried them, didnt like them. if im gunna have bulk, id
rather wear a diaper.
cloth/washable is out, as i still live at home (im 19) and dont wash
my clothes, nor do i wanna start washing cloth diapers. if i ddi go
that route, then id hafta wash them on my own time after work. right
now, the less i have to do, the better. handeling the job plus a
girlfriend plus my life is good enough, hehe.
i mainly ruled out UTI or any serious issue. i have increased my
sexual performance, no intercourse though, never have had any either,
but, latley its one weekend im very active and then 2 weeks in a row,
im not.
ive noticed i have the urge to go like 15-30 min AFTER i just went,
even tho i kno i dont have to go. i will mention this to the doctors,
as im calling for an appointment tomorrow.
thanks all!!

Barb and Jenny, I need your help if you can. Due to my situations at
home and my life, I can't do all the updates and research like I did in
the past. If either of you come across new data on perthes or links,
please update the group or send them to me. I hope things change this
summer. My job has slowed and I'm doing things that take all day. I no
longer have time to research or stay up to date. Every time I go home
it's like returning to work. I look forward to leaving so I can get
some rest. Sounds strange I know, but that's the life away from a
normal job. Brian

I have been wearing diapers all day and at night incase i do wet. i
dislike the fact i stain my underwear or the bed, etc. I am going to
make an appointment with a doctor and hopefully have that checked out
within the next week or 2. id like to know what it is. Anyone know of
any medications/perscribed drugs that treat this?

Tina....you will have tons of friends here....i will keep you in my prayers, all of you.

It is a relief sometimes to get things off of our chest, I am sure you felt the weight of all you have been carrying lift. Huggs to you...

Alice
mistresstaylor666 <mistresstaylor666@...

hi my name is tina,i have four lovely children.My daughter carri-lee
was diagnosed with perthes on the 22nd october 2005,she was 5 at the
time.The way we found out was one evening she fell out of the bath
and was rushed to queen margaretes hospital in dumfermline,her xrays
showed she had fluid and bad bruising around her right hip,we were
sent home with ibrufen and told to make her rest. That was hard how
many five year olds will sit at peace ha ha,two days later we
recieved a letter from the trauma clinic telling us there was a
confusion over carri-lees xrays.So we went back the next day,we spoke
with an orthopedic surgion who refered us to DR MCNICOL in sick kids
childrens hospital in EDINBURGH he is the leading pediatric
orthapedic surgion there. He was brilliant he explained everything to
us,we were told its rare for girls to get perthes and we were lucky
that she fell out of the bath or we would have found out to late and
things could be worse.Im sorry how could things be worse all this was
devastating for us to hear,my other children were very upset,i was
beside myself.How could my little angel be disabled. Carri-lee was
put in a wheelchair,she thought this is great fun,we couldnt find a
school that was wheelchair friendly so no school for over a year,even
getting a home tutor was hard.even so we got ourselves into a routine
my other children ages 4 10 11 helped as much as they could things
are hard but you learn to cope.Her anthrogram was easy enough to get
through,we were told she has severe perthes,fragments of bone
floating around her hip causing her more pain as the months
past.After seveal xrays they decided it was time for Traction in
hospital only two weeks,was hard to find sitters for my other kids,i
wanted to spend as much time in hospital as posible my partner and
myself took turns.After one week of traction on both hips they
decided she needed varius osteotomy i think thats how u spell it!we
agreed so after two weeks in traction they operated,she wouldnt talk
to me when she came round,she wanted my partner,i was hurt but i knew
she hated me for sending her to theatre.Shes a beautifull very active
little girl well she was before all of this,now shes low and
agressive shes put on two stone,its my fault i spoil her
rotten.Everything was going well the doctor gave her crutches to use
around the house minimal weight bairing, months past xrays were
looking good.We moved home last month to be close to a school which
has the facilities that carri-lee needs,she is loving it new
friends and not stuck at home with me. Her last xray was not good
for some reason the ball joint is not healing the way it was loads of
fragments and a slight fracture the doctor reckons she must have
fallen or she is puting too much weight on her leg,so now she can nt
weight bare and shes to go back in April for the surgeon to decide
what surgery to do next.I have only had the support of my partner my
parents couldnt face looking at theyr granddaughter being in her
wheelchair,which i do not understand needless to say i do not talk to
them now. I have no friends to talk to about how i feel.I must admit
i feel so much better now i have written this.Well if any of you have
any advice or questions!let me knowxxxxxxxxxxxxxxxxx

Mike,

You might consider talking to Robin at continenceconnection.com, she's a registered nurse, and I know that her site does have some of the young adult briefs available. She could probably point you in the right direction. Her son suffers from incontinence, so she would be familiar with the youth products. I'm not affiliated with her site, but she's really nice, and easy to talk to.

Later,

Matt
Mike <daysofthundr46@...

im 6 ft tall and only 155lbs with a 30-31 inch waist, and only 19 yrs
old, and a lot of the diapers out there i find seem t ve really large
or really not up my ally. i tried depends adjustable's, and, they fit,
but not snugly, and i cant tighten them to my liking. I have a pack of
tena's that are mainly classic diapers, and i like how i can adjust
the tapes.
with that said, are fitted (no tape) briefs ay good? i see most call
for a size small being 33' waist as the smallest, so im not sure how
that will fair. or should i stick with regular tape style diapers? or
even go to kids/teen diapers?
thanks
mike

hi my name is tina,i have four lovely children.My daughter carri-lee
was diagnosed with perthes on the 22nd october 2005,she was 5 at the
time.The way we found out was one evening she fell out of the bath
and was rushed to queen margaretes hospital in dumfermline,her xrays
showed she had fluid and bad bruising around her right hip,we were
sent home with ibrufen and told to make her rest. That was hard how
many five year olds will sit at peace ha ha,two days later we
recieved a letter from the trauma clinic telling us there was a
confusion over carri-lees xrays.So we went back the next day,we spoke
with an orthopedic surgion who refered us to DR MCNICOL in sick kids
childrens hospital in EDINBURGH he is the leading pediatric
orthapedic surgion there. He was brilliant he explained everything to
us,we were told its rare for girls to get perthes and we were lucky
that she fell out of the bath or we would have found out to late and
things could be worse.Im sorry how could things be worse all this was
devastating for us to hear,my other children were very upset,i was
beside myself.How could my little angel be disabled. Carri-lee was
put in a wheelchair,she thought this is great fun,we couldnt find a
school that was wheelchair friendly so no school for over a year,even
getting a home tutor was hard.even so we got ourselves into a routine
my other children ages 4 10 11 helped as much as they could things
are hard but you learn to cope.Her anthrogram was easy enough to get
through,we were told she has severe perthes,fragments of bone
floating around her hip causing her more pain as the months
past.After seveal xrays they decided it was time for Traction in
hospital only two weeks,was hard to find sitters for my other kids,i
wanted to spend as much time in hospital as posible my partner and
myself took turns.After one week of traction on both hips they
decided she needed varius osteotomy i think thats how u spell it!we
agreed so after two weeks in traction they operated,she wouldnt talk
to me when she came round,she wanted my partner,i was hurt but i knew
she hated me for sending her to theatre.Shes a beautifull very active
little girl well she was before all of this,now shes low and
agressive shes put on two stone,its my fault i spoil her
rotten.Everything was going well the doctor gave her crutches to use
around the house minimal weight bairing, months past xrays were
looking good.We moved home last month to be close to a school which
has the facilities that carri-lee needs,she is loving it new
friends and not stuck at home with me. Her last xray was not good
for some reason the ball joint is not healing the way it was loads of
fragments and a slight fracture the doctor reckons she must have
fallen or she is puting too much weight on her leg,so now she can nt
weight bare and shes to go back in April for the surgeon to decide
what surgery to do next.I have only had the support of my partner my
parents couldnt face looking at theyr granddaughter being in her
wheelchair,which i do not understand needless to say i do not talk to
them now. I have no friends to talk to about how i feel.I must admit
i feel so much better now i have written this.Well if any of you have
any advice or questions!let me knowxxxxxxxxxxxxxxxxx

SecurePersonalCare.com proudly introduces the new Secure X-Plus! Loved
for their excellent construction and absorbency, SECURE diapers have
gotten even better with the new X-Plus! These new briefs feature:
* Wider, refastenable tape tabs and a printed frontal landing zone =
better hold
* More SAP in the inner core = more absorbency (even after multiple
wettings!)
* All-white, soft plastic construction + stretch foam waist = better,
more discreet fit
The new Secure X-Plus briefs are packed with more features than the
Abena X-Plus and Molicare Super diapers and cost even less! Visit
http://www.securepersonalcare.com/xplus-briefs.html?idiaper to learn
more about their excellent new product, the SECURE X-Plus!
Thank you for your support!

I have the same problem and have had it for years. Deep sleep results into bedwetting and I use diapers and plasticpants. This is the very best I think. I never wet at daytime.

1-2 mornings a week i notice i wake up wet, and ive thought it was wet
dreams. recently i switched to white underwear and i noticed its nor
semen or white dreams, its mainly urine, as theres yellow stains on
them. This seems to happen when a) i sleep crappy the day before and
the next night i get good sleep and wake up wet and/or b) i get a good
nights rest and have a VERY deep sleep. i find when i sleep deep, i
wake up very wet.
i also noticed when im lifting heavy objects from a sitting position,
or just get in a awkward position and then get up or move, there is
some leakage.
it seems like when i go, theres still 1-2 drops left, but, when i do
use the bathroom, i make sure its all out. about 15-30 min later,
sometimes, a few drops will leak out.
I never have a problem going, nor any issues holding it in, if
nessasary. I never find myself running to the bathroom.
i did quite a bit or resurch online and found it can be "Mixed
Incontinence". This website:
http://www.ucurology.org/homeThumbs/femaleUrologyF.htm really seemed
to break it down well for me.
i highly doubt its anything serious, like my prostate or anything like
that, im 19 and healthy, so i ruled thoes all out.
any advise would be great!

im 6 ft tall and only 155lbs with a 30-31 inch waist, and only 19 yrs
old, and a lot of the diapers out there i find seem t ve really large
or really not up my ally. i tried depends adjustable's, and, they fit,
but not snugly, and i cant tighten them to my liking. I have a pack of
tena's that are mainly classic diapers, and i like how i can adjust
the tapes.
with that said, are fitted (no tape) briefs ay good? i see most call
for a size small being 33' waist as the smallest, so im not sure how
that will fair. or should i stick with regular tape style diapers? or
even go to kids/teen diapers?
thanks
mike

1-2 mornings a week i notice i wake up wet, and ive thought it was wet
dreams. recently i switched to white underwear and i noticed its nor
semen or white dreams, its mainly urine, as theres yellow stains on
them. This seems to happen when a) i sleep crappy the day before and
the next night i get good sleep and wake up wet and/or b) i get a good
nights rest and have a VERY deep sleep. i find when i sleep deep, i
wake up very wet.
i also noticed when im lifting heavy objects from a sitting position,
or just get in a awkward position and then get up or move, there is
some leakage.
it seems like when i go, theres still 1-2 drops left, but, when i do
use the bathroom, i make sure its all out. about 15-30 min later,
sometimes, a few drops will leak out.
I never have a problem going, nor any issues holding it in, if
nessasary. I never find myself running to the bathroom.
i did quite a bit or resurch online and found it can be "Mixed
Incontinence". This website:
http://www.ucurology.org/homeThumbs/femaleUrologyF.htm really seemed
to break it down well for me.
i highly doubt its anything serious, like my prostate or anything like
that, im 19 and healthy, so i ruled thoes all out.
any advise would be great!

Thanks Kayen
kayren <kayrenstevens@...

Hi, Jenny how did Jared's surgery go today? I hope he's doing well, our
church is praying for him and your family. Our pastors and his daughter
have a bone disease where there bones r so thin that they break easily.
I remember the 1st time i saw his daughter she was 4yrs old in a full
body cast and now she's almost 23yrs old, she's just 4ft6in tall, she
tells Michael not to worry about himself being so small in statue, for
look at her she's doin well and she's small. He looks up to her and i'm
glad to have them in our lives cuz they help me w/alot. even though
their bone disease is different it still helps to know others have gone
through hard times. she had to learn to walk 4 different times. the
last time was when she was almost 6yrs old and in the last body cast i
can remember she didnt want to walk ever again for she was scared she'd
fall and break another bone again, but finally one day she decided to
walk and she held onto the wall and walked down the hallway of their
home to her mother and hasn't looked back...she still cant do alot of
things like rollerskate or ski but other than that she's done fine.
anyhow i've gotten off subject here. I hope Jared's surgery went well
and u all r still in my prayers. kayren

Jenny,

Praying all is going well.

When you get time, let us know.

Alice

Keep in mind, I'm answering from memory and not from a book.
Children under 6 very rarely need any treatment unless it involves
the full head. Braces work around 86% of the time. Casting around
93%. But casting today in the united states isn't used for treating
like it was in the past and over seas. Most only cast to maintain
abduction after tendon release. From my past orthopedic work, most
braces fail from parents not making the child wear the brace. That
was why I was so happy when those picturs were posted of a child
wearing a brace. If fitted and worn correct, it can be effective as
the brace. It just looks bad but the child adapts and moves on. A
palvick harness is used on very young children. Mostly under 6
months old but it can be used at late as 3 years old. How it work is
this. It's a passive brace. Staps over the shoulder attatch to foot
sturrips. The straps go infrount of the bady and behind to the
sturrips. They are fitted to prevent the child from straightening
the legs. They are kept bent and 90 degrees. Normal passive weight
from the legs cause the legs to spread appart. This is caused
passive abduction and is normaly all that it takes to get the hips
to stay inside the sockets for most kids with dyspalsia. I hope I
answered all the questions for you. In my opinion about your child,
I wouldn't be too concerned unless the hip is fully involved and
only then if he has some collapse. If so, I would ask the doctor to
try the brace. Most don't like them because of the failer rate I
wrote about. But some are finding it helps long after regrowth
starts to help form the new hip. Children do the most growing at
night and the brace hasn't shown to hurt if used as a night splint.
Brian

Hi, Jenny how did Jared's surgery go today? I hope he's doing well, our
church is praying for him and your family. Our pastors and his daughter
have a bone disease where there bones r so thin that they break easily.
I remember the 1st time i saw his daughter she was 4yrs old in a full
body cast and now she's almost 23yrs old, she's just 4ft6in tall, she
tells Michael not to worry about himself being so small in statue, for
look at her she's doin well and she's small. He looks up to her and i'm
glad to have them in our lives cuz they help me w/alot. even though
their bone disease is different it still helps to know others have gone
through hard times. she had to learn to walk 4 different times. the
last time was when she was almost 6yrs old and in the last body cast i
can remember she didnt want to walk ever again for she was scared she'd
fall and break another bone again, but finally one day she decided to
walk and she held onto the wall and walked down the hallway of their
home to